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tdubs17
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Hi, just found this site and wanted to introduce myself. Diagnosed Feb 2020 with Stage 4 non-operable ovarian cancer. CA 125 was 2200, 6 rounds of chemo started March 2020 and now CA125 at 204. Tumor has shrunk and omentem caking less thick? Im not too sure of all the new terminology etc. I have never felt pain, found the cancer after ultra sound and CT after I was bloating. Was drained twice before first chemo...8L each time. Felt so much better! I am 2 months post chemo now, never had any reactions to treatment. carbo.taxol except for the numb feet and hands. Had to reduce my amounts of chemo to about 55% strong. Toes are back, fingers are back to about 75%. I am now feeling cramps. Like menstrual, I have NOT yet started menopause, but haven't had a period in 9 months. no not pregnant lol. Im scared, im too young to retire. but am now on permanent disability. I don't know what to do with myself.. with covid and this ...its ALOT. Anyway, thats all I can think of for now. I look forward to chatting and reading. Im a bit lost out here....
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I'm so sorry to hear of your diagnosis. We've all been there at some point and it's truly a struggle to keep going sometimes. We're here for you....questions, just feel like venting, just a "virtual" hug from time to time....that's what this group is all about.
And please join us on our live chats...Tuesday evenings at 7pm CT, and Thursdays at 1pm EST. We've love to get to know you better and what we might do to help.
I'm off for surgery tomorrow. Diagnosed high grade serous epithelial 3C in early 2017. Right to surgery and then 6 cycles of chemo. NED (no evident disease) after that for a while but then recurred end of 2018. Since then on a clinical trial that will not cure me but is stabilizing the growth successfully. Side effects from the original chemo and now the drug I take ebb and flow. I'm learning to live with them and my new normal. Tomorrow is a fix up...they'll laser what they can get at, clean up some old scar tissue and fix a hernia that's been giving me some discomfort. I call it a tune up!
You might want to hook up with @jiselle16 and @nadiaC They were trying to get a group together of younger survivors. This disease is no longer the old lady disease it used to be and it's saddens me to see how many younger women is touches now. I'm 69...ouch, just realized I'll be 70 in December.
Hope to hear more from you once I'm back in action. In the meantime, stay well, stay safe and be strong.
Also, if you have not received the free support guide from OCC, you can order it here:
https://ovariancanada.org/living-with-ovarian-cancer/newly-diagnosed/by-your-side