Looking for any Clear Cell Carcinoma Sisters! (Ontario)
Hi,
I'm 48 and was just diagnosed with Stage 2 OCCC a few days ago. Feeling VERY angry and incredibly overwhelmed. I'm having a hard time accepting that I am now part of the Cancer Industry. Apparently the stats aren't that great for this cancer type.
Just wondering if anyone has any tips on how to cope, emotionally. Thanks.
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How are you doing today? There is a lot of support here on the site as well as many topics and coping strategies we hope will assist you. I'll also private message you.
I have a couple ladies in my in person support group diagnosed and treated for/with Clear Cell... I'll see if I can gain some insight to share or if they are able to join this site
My hysterectomy was in mid-November, 2016. The larger cyst was a 17cm oval. I got the pathology 4 weeks later; stage 2 ovarian cancer, with 10% of the cells being clear cell. The other cells were adenocarcinoma. I had chemo and radiation. The treatments weren't too bad actually, and now I'm No Evidence of Disease. Anyway, a year or so after the pathology report, they changed the staging 'rules' so what I had was stage 1C.
SpectacularKaos, did anyone say what percentage of clear cell you had? In any case, my doctors said as I had clear cell, I needed chemo and radiation, so that's what I had.
I was diagnosed with ovarian stage 1 grade 3(clear cell) in sept 2002
at age 47.So almost 18 years ago.! I had a completely hysterectomy to remove a large cyst( they originally thought benign ) by a gynaecologist. They determined it was malignant on the operating table.
I was then referred to a gyn oncologist in Calgary and had a staging operation 10 days after first operation. I’m sure they must do that differently now. Hopefully as that was tough.
I completed 6 rounds of carboplatin and taxol.
I just wanted to try and give those newly diagnosed Hope that clear can be cured!
I did not have access to all the wonderful info and support groups then. Ovarian cancer Canada was just getting started.
After 18 years you don’t think about it much except for there are always residual effects from surgeries and chemotherapy. Although not bad for myself.
Just a note though I had IVF when I was 30 years old and delivered triplets.
I often have wondered if that procedure maybe contributed to the ovarian cancer( drugs)? No definitive answer to that I have found.
Wishing the best for your friend of a friend. Much more information can be found on the main site if you wish to refer her https://ovariancanada.org/
and hope she has the resource guide "By Your Side" whcih can be ordered here:
https://ovariancanada.org/living-with-ovarian-cancer/support-resources
And we are grateful science and treatments are always evolving!
@deborah ...did your oncologist ever mention if clear cell is hormone dependent? I was given a prescription for HRT to deal with the symptoms of surgical menopause, so I would assume the answer would be no. Obviously this is a question for me to bring up again with my oncologist at my next checkup, but curious as to what others with clear cell have been told?
I was diagnosed with stage 2 clear cell ovarian cancer in January of this year, after having been diagnosed with IDC the month before. So, it's definitely been a rough 7 months so far. The mass on my left ovary was quite large - approximately 12x9x11cm, and ruptured during or just prior to the surgery. There was also indication of early spread to the left ovary. Chemotherapy was the recommended treatment. I started my 1st of 6 chemo cycles in May (Paclitaxel and Carboplatin) and will have my next and last round in a couple of weeks. I'm looking forward to getting it over with, as it's been quite hard - in my case, with intense back pain and issues with the digestive system. At the same time, also feeling anxious, nervous and keeping my fingers crossed that the chemotherapy has worked - at least for the moment. Glad to know that we are not alone out there!
I was diagnosed with stage 2 clear cell ovarian cancer in January of this year, after having been diagnosed with IDC the month before. So, it's definitely been a rough 7 months so far. The mass on my left ovary was quite large - approximately 12x9x11cm, and ruptured during or just prior to the surgery. There was also indication of early spread to the left ovary. I started my 1st of 6 chemo cycles in May (Paclitaxel and Carboplatin) and will have my next and last round in a couple of weeks. I'm looking forward to getting it over with, as it's been quite hard - in my case, with intense back pain and issues with the digestive system. At the same time, also feeling anxious, nervous and keeping my fingers crossed that the chemotherapy has worked - at least for the moment. Glad to know that we are not alone out there!