At 49 years of age I was diagnosed with Stage 1C Serous Carcinoma Aug 16, 2016. I recieved 6 months of Carboplatin and Taxol - every 3 weeks. I had every symptom ( I listened to my body) I said to my family Dr. It whispers his reply is No? Well, I am telling you as a female it does. Yep, fired this Dr.! I now have a lovely female Dr. that understands the female anatomy. …My symptoms were extreme fatigue, feeling full after eating and then vomiting, peeing my pants, back pain and just over all unwell. When I went to my Family Dr. I said "I feel like my abdomen is going to fall out" my tumor was 10cm in July 29th and within 3 weeks grew to 15cm. Insurance co. pushed me. Never again.
I have been in and out of the hospital the last 7 months - WBC, Leukocytes, Platelets all extremely low, lung, kidney and urine infections. Why? they do not know. Run down … My thoughts. Usually they are right my thoughts that is. I am afraid to return to work - I work in an environment similar to a hospital. Stressful job and high expectations. I am the only one that does my job.
If anyone else has been in this situation - I would love to hear from you.
Wishing everyone all the best.... Stay Well....
1st Recurrence (vag, liver) May 2017, chemo with carbo/paclitaxel. Radiation Nov-Jan 2018. NED.
2nd recurrence (vagina) Aug 2018, carboplatin caelyx. Very small spots remained in Jan. Carbo maintenance since Jan.
3rd recurrence (vagina, rectum, lungs) May 2019 - just found out a couple of days ago;-() so starting a week of radiation, then chemo in next few weeks.
I have been working full time throughout. My secret? Flexible job, good colleagues, supportive husband, not shiftwork, very stubborn and worried that if I don’t work I would just sit around worrying! Ha!
Everyone is different!🤷🏻♀️
Because the OC is "high grade" and because my one tumour was protruding out the fallopian tube, my oncologist is sending me for 6 rounds of Carbo/Taxol. I start in 3 days!
Stage one is good, but aggressive cancer (high grade) is not. My oncologist says OC is a sneaky bugger that likes to recur, so I am focusing on getting through this chemo and then putting together an aggressive screening plan to hopefully catch any recurrences right away.
Best of luck to you, feel free to reach out anytime if you'd like to chat.
I am so glad they caught yours early...we sound so familiar in our disease. Both so young .. (me) 49. Remember to drink lots of water (alkaline) it's what I drink anyways - it helps with the PH and toxicity in our body's so they say. I am 16 months post chemo - so I am saying it works! Apple cider vinegar in your water is good too. I joined the "I can" program at the YMCA - there are studies showing that working out during/after chemo is a good thing - but slow. It may be hard but, check with your Oncologist to see what they have heard. Oh! - I also drink Essiac tea. I have the recipe if you have patients to make it.
You are right about the "High Grade" I find meditation helps me and "Yoga" level 1, a lot of support comes out of my Yoga studio.
I listen to Guided meditation by Sharon Salzberg - followed by peaceful Ocean Waves and Mindfulness Bells. "relaxing".
"Listen to your body" and pay attention to it.
Keep in touch - sending you lots healing wishes! I am here is you have any questions at all. X