A little about me. I'm 34 and had debulking surgery in June 2017. A tumour the size of a catalaupe was removed. Along with my right ovary, (I had a border line tumour removed along with a salpingo-opphorectomy in 2009). Thrown into surgical menopause after June 2017 surgery, thanfully able to take HRT! Pathology came back as Mucinous Carcinoma 1C, grade 1. I'm currently undergoing 6 rounds of adjuvant chemo, (carbo only). I understand there aren't many with the same diagnosis of Mucinous, we're a rare breed. I'm always looking for others to relate to in a similar situation. Thanks!
Yes, that is the challenge I found was, to determine what is surgery recuperation vs the disease. Over time, it seemed to work out. I kept a log book or list of symptoms, details and concerns so that I could track and discuss at the upcoming appointments. This way it was recorded, out of my head and onto paper which was also helpful to look back on. The DR team was able to explain and put me at ease. If you are still having issues and are not feeling well, do connect with your medical team.
We hope you will find much support here on the site and I'll also private message you.
Sorry you have been through all that. Wishing you well as you recover from the surgery. We hope you will find much support here on the site and welcome you to review the topics as there are some good tips on dealing with post surgery, chemo and side effects here.
We try to log in together on Tuesdays so if you are up for joining us, it is at 7:00 PM CST which will be much later for you in the east. The bonus is the chat site is 24/7!
I have to admit to being hesitant to post on here (or even read anything) because I was worried other people's treatment plans would make me nervous about my own. Not that I'm lacking faith in my plan, but I'm now unsure why I still have my appendix and you all seem to be without yours? Hmmmm... attempting to not worry
As stated earlier, I never had any treatments other than surgeries. In Sept of this year I had an ultrasound with interesting information. It appears that I have a cyst growing in my transverse abdominus. When asked if it would go away on its own, my GP said that he didn't know as it was unusual. Like you I am not trying to read anything into it, but this is how it all started. I had a CT scan in early November, so I should get more information soon. Fingers crossed!
Hi @Ingrid_Canon. I, too, hope for good results from your scan!