Hello ladies,
I want to ask if anyone knows any information about Niraparib (Zejula)? From what I currently know it's a maintenance drug for ovarian cancer by Tesaro Drugs.
There is a campaign called:
Not on My Watch "about the importance of maintenance therapy.." I just saw it posted on my facebook. Wondering if this is or will be approved in Canada and what patient population with ovarian cancer are eligible for it? For ex. is it just for the brca gene or any ovarian cancer patients?
The last time I read about Zejula was last year and it was just the US at the time. Trying to understand this and other maintenance therapies more, for women who do not fall into the "brca gene" group as I have recently learned that only they have access to Olaparib parp inhibitors.
Would like to see more options for other ovarian cancer types as well.
Thoughts? Comments?
Thank you in advance
Comments
I just finished a 14-month remission time with Nirapatib on a trial protocol in Montreal at the cancer research center. It stopped working for me but 14 months was awesome. I am BRCA 2 positive but it's for anyone, not just the brca gene. Where are you from?
She was on for maybe 5-6mths and had good numbers but had to quit as the side effects were becoming too onerous and the drug stopped being effective for her.
She is now about to go back to "traditional" platinum-based chemo.
Thank you for commenting and sharing.
Have you received a copy of our guide, By Your Side? It is a free book that you can order online here:
https://ovariancanada.org/living-with-ovarian-cancer/support-resources
I believe you have already been told about our office in Montreal. The Regional Director is Esteban Bongiovanni and he can be reached at [email protected] or 1-877-413-7970 x331. (He will be back from vacation next week).
Great to have you on the site. Glad that you finding it so helpful!
Marilyn