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I'm sorry to hear that you landed in the hospital. When you say that experience led you and your husband to do and no longer wait - what does that mean? What are you going to do?
I mean that my husband and I have been making travel plans for a year or two down the road. We have taken many family trips over the last five years, but my husband and I want to take a trip by ourselves. I’m now want to take that trip soon, we are going to do a big family vacation. And I’m planning my First Annual Living Wake for April of next year. We are also just going to do what we want when we can.
I am writing a journal of our past, with photos. I have made a baby blanket and hat. I have my earrings and garter belt from my wedding. I have little notes. A high school graduation gift and card. I have an app on my phone ‘Record Me Now’ which asks questions and video records your answers. I have requested my family a friends provide stories of me. I bought a box from Michael’s to put it all in. My husband will give the items to her at the appropriate times.
I can only imagine how you are feeling and the fear and sadness you are feeling as it relates to your son. @Tricia415 has some wonderful ideas about what she is creating for her daughter. Maybe when you feel a little stronger, after a little more time to adjust to this latest news, you will be able to think about what you can do for your son. How old is he? Is there someone close to you that you could talk to about this and maybe ask for some help?
Click on "events and support" tab - then select "go online for support" , then click on Webinar series... all of the pre recorded sessions are there. I found them helpful and hopeful!
How are you feeling today @Tricia415 and @Claudia and @Pumpkinpi ?
I am wondering and curious, for those who have experienced or are currently dealing with a recurrence, are you able to compare what it is like - physically and/or emotionally - or share what you are comfortable with - to how it was when you were first diagnosed - thanks in advance.
I went back through the previous chats? Are you still in Saudi Arabia and are you still in treatment at this time?
I learned today that my blood test showed that the CA125 is at 1,500. My gyne onc ordered a CT scan a week ago, but I have yet to hear anything - unfortunate delays esp due to the easter weekend closures. They say they are rushing things. It's hard to find much comfort in that because this is scary. My mind went to the worst case scenario today when I heard the CA125 number, just like it had two years ago.
Yet somehow, later this afternoon, I was able to feel some lightness and the worry lessened. Perhaps I was able to alter my thoughts a little, and made a decision that it is what it is, and I will just fight like I did the first time. I'm back in warrior mode. How do we find the strength, right? But somehow, we do. Reading your stories here tonight has really helped me begin to prepare for what is coming. It's such a hard journey, but you are doing it. You are inspiring to me, and I hope to beat this again.