Hello all, my name is Tricia, I live in Victoria, BC. I was first diagnosed with Fallopian Tube stage 2b high grade serous carcinoma September 11, 2012 age 43. Five year anniversary on Monday. I have been in treatment basically the whole time. I have just started my 7th chemotherapy protocol. I will be at our walk in Victoria on Sunday, and have gathered a very large group to walk with me.
It looks like you might be new to OVdialogue. Please register or sign in to participate in discussions.
It must be tough to deal with menopause at such a young age. And a difficult juxtaposition to your friends having babies! How do you handle that? Do you have any tips for each other? Do you have any stock phrases you have come up with if asked about having children?
There is a certain comfort in seeing the other survivors out for the Walk too. You don't feel so alone because even though I have a very supportive partner, family and friends, no one except another survivor knows how you really feel. So here's to fighting the fight!????????
@Jackie I had uterine and ovarian cancer as well, before the hysterectomy, I knew about the uterine cancer due to a previous surgery. I was mentally prepared for that treatment as I had researched it so when they told me about the ovarian cancer it was a big shock.
@kastoyles I am finding the hysterectomy a cursing and a blessing, but my husband always says that he'd rather have me healthy than not. I've also always had trouble sleeping and more since menopause has started.
I'm so glad I found this community. I have been looking for a place to talk with people who understand. Living outside of Winnipeg, there aren't that many resources available to me.
Hello everyone, I am 48 years old and I live in Toronto, with my husband, and my cat. My emotions for the last couple of months have been up and down. I have stage 4 endometriosis and was seeing a naturopath about doing a colonic. It was suggested that I get an ultrasound which was done on July 11, 2017. I then received a call from my family doctor and wanted to see both is and it was shocking to hear that there was a mass with blood flow and the doctor referred me to Princess Margaret Hospital and they also did a CA-125 test. The CA-125 test came back with a low number and the Doctor who saw the CT scan said he was 90% sure it was not cancer. Well, I had the surgery on September 6, 2017 and it was a very long surgery and they did find cancer. He said it was deep inside the mass on my right ovary and I had a total hysterectomy and they also removed lymph nodes. I was overnight in hospital and now back home trying to recover - I also have scoliosis and it makes getting in and out of bed or chairs more difficult. I am to see the doctor on September 28, 2017 to get the results but he believes that I am a true stage 1. I am trying to take it day by day but I cannot stop thinking about chemo. I don't want to throw up and feel sick for weeks. I am scared. My husband did play the webinar video of Ovarian Cancer 101 with Dr Altman that had lots of information but I guess I will have to wait for the followup visit with the Doctor on September 28, 2017 to see what the plan will be.
Regarding how to navigate in OVdialogue, if you have questions about anxiety you can post a comment in that discussion and ask your question there. Since there is no specific discussion about chemo, you could start a new discussion if you like.
Ovarian Cancer Canada has resources for you like a guide called By Your Side. This is a book for women recently diagnosed with ovarian cancer that will provide information about a lot of different issues related to your diagnosis. I am happy to send one to you free of charge if you send me your mailing address. We also have other resources that you may be interested in. I am happy to talk to you on the telephone and answer any other questions you might have.
I am so glad that you found OVdialogue and have joined the community. There are a few other women who were diagnosed at stage 1 so once you know what is happening with you, they may be people you would like to connect with. @KarenL @kastoyles @jemgirljeri @jiselle16
Please feel free to private message me if you'd like to talk.
I am another Marilyn. I am a little different here at the OVdialogue. I am not newly diagnosed but have joined for a couple of reasons. I was diagnosed at the age of 11 in 1976. That makes me a 41 year survivor. At that time, the Doctors told my parents that I was the only one under age 21 in Canada. They consulted with Doctors in New York to develop my treatment plan. I had surgery, 6 weeks of radiation and 2 years of chemotherapy. Luckily treatments have improved but survival rates have not. I became involved with the Walk of Hope 4 years ago in Peterborough and have been the Chair for 2 years. As a survivor of Childhood Cancer I am always trying to find out more about long term effects because I think it is important to be aware of all of the things to be looking for. I also am exploring genetic screening. Although I have had a full hysterectomy about 10 years ago, it might be good to know if I have the genetic markers because of other cancers such as breast cancer. I have two cousins who have had Ovarian Cancer and my sister had Uterine Cancer. It also might be good information to pass on to my niece and her daughters. As the Walk Chair, I also would like to hear ideas about the best ways that I can support women in my community who are faced with the disease right now. I am interested in resources and we are considering an area face to face support group. So, I am here to explore many things.