Introducing new volunteer moderator
MarilynOCC
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Hi everyone,
I am excited to announce that @Flowergirl has agreed to take on a new role within OVdialogue as a volunteer moderator. Flowergirl is a member of the group of women who worked with Ovarian Cancer Canada in setting up OVdialogue and she has been very active in the community since the beginning. Flowergirl also started the Teal Tuesday discussion and is online every week to talk to people at 7pm central time. She has been responding to new members, comments and new discussions and will continue to do that but in a more official capacity. She will also take on a larger role of moderation while I am away from the office over the next couple of weeks. I will be online, but on a more limited basis, and either myself or another staff member will be available to Flowergirl to provide her with back up support, as needed.
Thank you @Flowergirl for exhibiting such commitment and support for the women in OVdialogue. Please join me in welcoming her to this new role!
There are many of you who are active members in the community and it is because of your involvement, your ongoing activity posting comments and starting new discussions that OVdialogue is becoming the place to go for women with ovarian cancer to find answers to their questions, support, encouragement and hope. You are there for each other and it has been amazing to see this community grow in such a short period of time. Thanks to all of you for embracing and engaging in this new initiative!
I am excited to announce that @Flowergirl has agreed to take on a new role within OVdialogue as a volunteer moderator. Flowergirl is a member of the group of women who worked with Ovarian Cancer Canada in setting up OVdialogue and she has been very active in the community since the beginning. Flowergirl also started the Teal Tuesday discussion and is online every week to talk to people at 7pm central time. She has been responding to new members, comments and new discussions and will continue to do that but in a more official capacity. She will also take on a larger role of moderation while I am away from the office over the next couple of weeks. I will be online, but on a more limited basis, and either myself or another staff member will be available to Flowergirl to provide her with back up support, as needed.
Thank you @Flowergirl for exhibiting such commitment and support for the women in OVdialogue. Please join me in welcoming her to this new role!
There are many of you who are active members in the community and it is because of your involvement, your ongoing activity posting comments and starting new discussions that OVdialogue is becoming the place to go for women with ovarian cancer to find answers to their questions, support, encouragement and hope. You are there for each other and it has been amazing to see this community grow in such a short period of time. Thanks to all of you for embracing and engaging in this new initiative!
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Comments
Your expertise and commitment is is appreciated.
Happy Holidays!
I’m 71, mother of three, step-mother of 3, grandmother of 12. I was diagnosed with stage 3 ovarian cancer in June 2017. I had three rounds of chemo (nine sessions) starting in early July 2017, debulking surgery in September, another round of chemo in October, one more treatment consisting of 80% of what a round would have been, and then opted out of the final round. One of the reasons I opted out of the last round was that the tumour markers had dropped from a high of almost 2600 to 37. The other reason was the fatigue. I’ve spent most of the last six months lying on my bed.
My oncologist has told me more than once that the cancer will recur within six to 18 months, but I feel well now (other than a mild outbreak of shingles during the holidays) and am gradually getting a bit of energy back. And my hair is starting to grow again.
However, I don’t have a desire to live. I feel very reluctant to admit this and haven’t told anyone, but I’m hoping that I get sick again sooner rather than later.
I would like to hear from anyone else who feels this way. I know this is group is about hope and support but surely I can’t be the only person who feels like this.
Thank you again for sharing the exact feelings - so often difficult to do and I know I can relate. This is a safe space and we welcome the good and the so called "bad" or raw feelings - it is the reality.
You are a few months out of chemo and it is nice to hear you are getting energy back. I invite you to take some time and explore the topics on the site. I've noticed we have had an increase in participants and new comments/topics daily are added - thanks everyone - this is great!
Please do share your emotional and physical symptoms with your health care team.
If you would like to connect or request a participant to comment, you can use the @ and user name (like @Flowergirl )
and that will send a notification and perhaps prompt a comment or response. You can also direct message a user by clicking on their icon or name and those comments/messages won't be public. I'll connect with you so you can see how.
You have the option to share your story on your log in page or you can click on the "Let's get Started - Come Introduce yourself" topic and start there.
We needed this cold winter day so everyone can be together online! Hope you are all doing well.
@Kitty....I'm sorry you feel that way... life is precious and you have been through a traumatic time. Give yourself some grace, and spend some time making memories with those 12 grandkids. Hope you feel better soon.
Hi all. Kitty i have said a couple times "i feel defeated". This can be an overwhelming journey to travel. The treatment, well you know all about the treatment. It is a lot to process when they tell us %'s and recurrence times. To be told the cancer is incurable, when it might return, what the next steps are, makes it all seem so hard. I so understand where you are coming from. Try to concentrate on the positives, the good things in your life, and plan/enjoy special events. I like to think the optimistic attitude helps. Keep in touch, as we all in this together.
I invite you to take some time to scroll through the topics, it is easy for them to get lost in the shuffle.
When you can - please join us in the Live Chat - Tuesdays @ 7:00 PM CST