Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?

OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!

Questions about CRS and HIPEC

Hi there,

I haven't been on this forum for a while but I have some questions about HIPEC. I was diagnosed with stage 2B high grade endometrial ovarian cancer in October 2023. I had surgery in December (all gynecological parts plus omentum and appendix removed) and started with carboplatin and paclitaxel late January 2024. In April the CT scan showed that I did have peritoneal nodules that were missed in previous CT scan so I was reclassified as 3B. Despite the nodules growing throughout the six courses of chemotherapy, my oncologist thought it would be worthwhile to continue for three more cycles. The PET scan six weeks after nine courses of chemo ended showed progression of disease and I was deemed carboplatin refractory. I am now on gemcitabine and bevacizumab.

I have talked to a researcher in Ontario who thinks HIPEC (using mitomycin, maybe) may be of value to me but my oncologist dismisses it out of hand. If anyone can give me any insight into why that may be the case, I would appreciate it. I live in B.C. and I find B.C. cancer is very protocol based.

Thanks for this