Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
LGSC and trials
Options
Strongwoman
Moderator
I am wondering if anyone with LGSC has looked at or trialed any of these:
GOG 3026
RAMP
BOUQUET
Does anyone know if they are available in Canada as well?
GOG 3026
RAMP
BOUQUET
Does anyone know if they are available in Canada as well?
0
Comments
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Good Morning!
For those ladies with LGSC, I am writing to report any progress I have had thus far with trials. I have an appt on Jan 15th at PMH (Princess Margaret Hospital) with a Gyn Onc as a consult and to go over anything that may be on the table for myself. Going in, I know in my heart of hearts that the criterium I want met are:
what is the overall success rate if I go on trial compared to if I do nothing?
what are the side effects of what I will be put on?
will trial stop the abdominal pain I experience daily?
will the side effects out weigh the outcome in the end?
how will I be monitored and how many visits etc am I looking at?
oral or IV therapy for trial (the BOUQUET trial has so many options that I currently think there are only 2 viable for myself but am unsure)
what their general knowledge and demeanor is when in the appt and would I like to work with them?
In the end, anything I learn, I will post and share for everyone here. I will be discussing at length anything on the table for myself with my Palliative doctor. I am at a point now that I am not willing to give up how I feel (most days) and the things I am able to do in order to going back to feeling rotten UNLESS there is a definite rainbow on the otherside type of thing. That is me though and what I want personally. Everyone is different. I am on a mission to get some of my Legacy projects completed no matter what I choose to do. I am very thankful and grateful that my neighbour is coming with me as she is a retired vet and will be a good advocate for me and will ask some questions I may not think of. Plus it also gives me another person to help me decide if I want to work with the team at PMH.
I will keep all updated as I go along.
Currently, I am waking with abdominal pains daily no matter if it is water, tea or food I eat or drink. I am more fatigued than before Christmas for sure. I take things as they come on a daily basis and rest when I need to. Above all else, I take time for me to make sure it is me that comes first.
Take care of yourselves and I look forward to chatting tomorrow with as many that can make it to the Teal Thursday chat!0