Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Avastin in the news
https://www.reuters.com/world/asia-pacific/pakistan-bans-roche-cancer-drug-pending-probe-into-patients-blindness-2023-09-25/
Hi everyone,
I just came across this news article related to Avastin. I hope anyone taking it won't be affected negatively
Hi everyone,
I just came across this news article related to Avastin. I hope anyone taking it won't be affected negatively
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Comments
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@melissa That was an interesting and thank you for sharing.
"The regulator said in its statement that in the cases concerned Avastin had been used off-label, meaning outside its approved use, to treat diabetes-related eye conditions. In its statement, Roche said: "Avastin is not approved for any use in the eye. Counterfeit medicines pose a health risk to patients because their content may be ineffective and contain harmful ingredients."
I quoted a couple of excerpts from the article ( in quotations & bold). It is a terrible thing that is occurring, "Alam Sher, Punjab's deputy drug controller who filed the police complaint against the distributors, told Reuters that some companies buy Avastin and repackage it in smaller doses to make it more affordable for patients."
It is not a nice thought to know that this occurs and is being used for what it's primary purpose is NOT meant to do. I feel for those that were affected and hope they get the treatment they need after taking it.
I do feel that after reading it that most of the women in Canada & U.S.A., may not be affected as our drug controls rules and governing bodies are different. This is also true for most parts of the world as well. I would hesitate that North Americans policies are the strictest but I think that they are up there as far as safety and uses of drugs for their original purposes. Daily researchers and scientist are working diligently on finding cures for Ovarian Cancer and from what I remember (possibly from our forum) there might even be a vaccine in the future. Future.....what is it and just how far away it is, I don't know but for many it's a hope they will cling to just in case it gets here for when they need it.
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