Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Internal Scar Tissue Discomfort
Hello Teal Sisters! Curious if anyone has discomfort from internal scar tissue? My debulking surgery was July 2021, finished frontline chemo December 2021. Scans declared me NED. I started having some mild discomfort in July 2022. Ct didn’t show anything but an MRI showed an early recurrence. I just finished chemo for first recurrence. PET & CT show no evidence of disease and my CA125 is within normal range. I’m still feeling these mild tingles in my lower left abdomen as well as some slight pressure in my lower abdomen when I use my “peeing” muscles. My cancer team is chalking it up as internal scar tissue & inflammation where cancer once was. Obviously I have a hard time believing it’s not cancer so was curious if anyone else has any similar experiences. Thanks for reading! 
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@MamaLlama
Sorry to hear that you recurred and had to go through treatment again. In answer to your question internal scar tissue is most commonly referred to as adhesions. They do occur naturally with any healing of tissue that has to come together again. Sometimes it becomes so adhered that it is attached to something that will cause discomfort on movement of some kind. Movement does help (like yoga, gentle stretching etc) and if you can massage in that area yourself it may help some. As far as adhesions becoming cancerous tissue, I don't believe it can change like that but it would be a question for your team. Inflammation and/or adhesions can cause surrounding tissue to become irritated and thus cause pain. Smooth muscle tissue (organs) is a different type of tissue than muscle (skeletal) and have different nerve receptors that cause the body to perceive pain in different ways. I am not sure if this little explanation helps you or not but hope it might. In the meantime, all you can do is chart your symptoms, talk with your team and go from there. My sincere hope is that you may obtain a longer NED status this time around.
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