Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Metastasizing
Has anyone else had their ovarian cancer metastasize to their skin? I have hi-grade serous with spread already to on bowel, near sigmoid colon and lung. Now it has spread to the skin. Caelyx has been working well on the internal tumours, but my gyne-oncology team are still researching how to proceed.
What treatment did you receive for the skin and how did it go?
What treatment did you receive for the skin and how did it go?
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Comments
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@Cheryllunenburg
Hmmm I was not aware that this could occur. My thoughts are that your team will meet and present you with treatment options. Have you read any literature on this yourself?
I will be interested in seeing either other responses or what your team comes up with.
In the meantime, how are you feeling about it and handling it?0 -
Treatment options coming up on 13 Jan. Other than reading that it is very rare, I am cautious of reading too much lest I stumble into less credible sources. Skin is the largest organ, so perhaps we shouldn't be too surprised that its possible. Its been hard to handle it. Biopsy results came out 26 Dec, so the timing has not been good for getting info. What was also hard was hearing this when it was thought to be infection of some sort. Plus caelyx had been working so well internally.0
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@Cheryllunenburg
Hello. I was thinking about you and was wondering how things are with you and if you have any updates you would like to share. I look forward to your post.
Take care0
