Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?

OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!

Initial symptoms and diagnosis

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Comments

  • My follow up ultrasound is showing 2 cysts now - I've asked for a referral for a second opinion because they're still relatively small (2 cm) and no one seems concerned despite the potential risks.

    An MRI shows that I might have a brain aneurysm.  They need an MRI with contrast so they can see blood vessels better... but yay no tumour found.

    Doctor asked me if I thought my fibromyalgia is causing pain... I don't know I said.  She asked if I'd try a prescription for that would help fibromyalgia pain.  I asked about side effects.  She said dry mouth and sedation.  I said I'd try it.
    It's an ant-depressant... and sometimes prescribed for neuropathic pain for fibromyalgia... with serious side effects.

    I don't have depression, and I'm pissed that she lied to me.
     
    I'm meeting a new doctor on Friday.  

  • Hi @AlbertaKat.  I hope that the appointment tomorrow goes well and that you find this new doctor more helpful and responsive....
  • Hello @AlbertaKat and @CanaryBird - I have been thinking of you both and hope you are doing well.... 
  • Hi dear @Flowergirl. Thank you for thinking about us. I hope you are well! We can talk via private messages, if you will? Take care!
  • Thank you @CanaryBird, I have been focusing on my health and spending very little time online.  My new doctor is excellent, and believes that my health issues are not cancer related.  I’m cautiously optimistic.
  • Thank you @CanaryBird - I will direct message

    Hello @AlbertaKat - thank you for letting us know and we wish you well - we are also here if ever needed for a friend!