How Can I Help? Elly Mayday

EllyMayday

Hello Ladies! 

You may or may not be familiar with my work but I have been public with my stage 3 diagnosis at 25. 
At that time I was just beginning my career as a model and decided to use my voice and platform to help bring light to the 
disease and the women facing it. I'm so proud to represent all the strong individuals I've met along the way. 
Please know I am so fueled by your love, support and the strength you all embody. 

My question is, where can I help you? What are some questions you have for me, what can I bring attention to in a broader sense? 
What topics would you like to see online both on the OvCa Canada site/social as well as mine. 
Just trying to support you as you have me.

Love the feed back and any discussions here will help me create content! 
Thank you  

Flowergirl

Hello @EllyMayday - glad you have joined the site!

JaneWest

Hi @EllyMayday , I'm glad you have joined this Canadian online community, specific to oc. With your wide reaching social presence, perhaps more women will find their way to this community, and add it to their list of supports. If you can include the link in your tweets/messages etc, I think that would be a great way to help many women. The more support the better. Thank you for all that you have chosen to do to bring awareness to this disease, and to help women living with it. All the best to you in your own journey!

EllyMayday

Thanks Jane, appreciate the message. I am happy to share the page. Im working with OCC’s social manager a bit more so I can create content to draw attention. Posting just a link gets such fewer views than posting with say a video or photo. 

I guess I’d like to know what topics would you want me to speak about?Specific to when you’re diagnosed, going through treatment or adjusting back to life. 

JaneWest

I'm not sure, just by looking at how many topics have been started on this site, there is a wide variety of areas of interest. I suppose the ones with the most comments: recurrence, chemo / surgery advice, anxiety, fertility. 

Marilyn

Hi @EllyMayday!  Welcome to OVdialogue!  I'm sorry that my response to you is so tardy!  Lovely to see you on OVdialogue and offering to promote it on your site and to talk about topics of interest to survivors.  There are some great discussions happening - top ones seem to be anxiety, recurrence and exercise based on the number of views.  Cross-pollination sounds great!  How are you doing?  Back in NY?

EllyMayday

Hey Marilyn, Thanks for the advice. Yes, back in NYC and I'm doing well. Looking forward to the year ahead. Hope you're well, excited to start some good discussions on my page for OCC. 

Afab

Hi @EllyMayday! I've been doing alot of reading and research since being diagnosed this past January (2018). Thank you for being such a wonderful advocate for OVC & being so open. I see I am late to this thread but would just love to see more content that is angled towards those of us who are young adults living with ovarian cancer. It is so hard to find sites or events that are specifically for this audience (20-40yr olds)- but there seem to be many of us out there, so many more than I expected (sadly).  The OVC journey is so much diff than other cancers I just don't find myself finding anything to relate to other than the very few OVC online boards. Thanks so much! 

Afab

Oh also, was wondering if you (or anyone else that might read this post) had an idea if the LadyBall would be returning to Toronto? I'm so surprised they aren't throwing the event here. I do hope they return the event for more fundraising opportunities in the future   
Thank you!!

Afab

Hi @EllyMayday! I've been doing alot of reading and research since being diagnosed this past January (2018). Thank you for being such a wonderful advocate for OVC & being so open. I see I am late to this thread but would just love to see more content that is angled towards those of us who are young adults living with ovarian cancer. It is so hard to find sites or events that are specifically for this audience (20-40yr olds)- but there seem to be many of us out there, so many more than I expected (sadly).  The OVC journey is so much diff than other cancers I just don't find myself finding anything to relate to other than the very few OVC online boards. Thanks so much! 

Marilyn

Hi @Afab ; Thanks for your question about the LadyBall.  This has been a very popular event in Toronto - called "Love Her" prior to "The LadyBall".  It has been running for many years and the volunteer committee that organizes this event in conjunction with Ovarian Cancer Canada decided to take a break this year.  We know people have been disappointed but stay tuned for what might develop next year! 

Anyone can organize a fund raising event in support of Ovarian Cancer Canada.  If you are interested in doing this, let me know or get in touch with your Regional Director.  
http://ovariancanada.org/about-us/our-team?lang=en-ca

I also know that it can be hard for younger women who are diagnosed with ovarian cancer.  There are different issues and challenges that you can face based on your age.  We have a webinar we did specifically for younger women - you can find it in the list of our past webinars here:
http://ovariancanada.org/events-support/go-online-for-support/webinar-series

There are other women in OVdialogue who were diagnosed at younger ages.  Perhaps you can connect with them to share stories:  @Adnamarama ; @jemgirljeri ; @jiselle16 ; @BrittMK ; @K_BrancOV ; @MarieRocks ; @Teddybear ; @sallyL ;  @GreenEyes ;  

There is also an organization called Young Adult Cancer Canada.  You may find some helpful information there.

EllyMayday

I've created a community called #OneHellOvaWoman on Facebook. There you can connect with other women, Some dealing with Ovarian cancer and some not. A mix of wonderful women around the world!