Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Lynpraza and mastectomy
Hello…I was diagnosed with high grade serous stage 3 in March 2020. I found out I have the brca2 mutation gene. I’ve been taking Lynpraza since September 2020 which great success.
1. My gynieoncologist has strongly recommended I have a complete mestecomy…has anyone else gone through it and is willing to offer any advice ? Obviously I’m following my doctors plan but wanted to hear from others.
2. My 2 years are almost up with Lynpraza and wondering if anyone has taken it longer then 2 years? My oncologist is looking into it…so still on it until September.
I have 2 questions …
1. My gynieoncologist has strongly recommended I have a complete mestecomy…has anyone else gone through it and is willing to offer any advice ? Obviously I’m following my doctors plan but wanted to hear from others.
2. My 2 years are almost up with Lynpraza and wondering if anyone has taken it longer then 2 years? My oncologist is looking into it…so still on it until September.
Hoping to connect with others
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Comments
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@CMacD
Good Morning! Welcome to the group. I, personally have not experienced either but other Teal Sisters have. Have you tried typing in the search bar any of the info you are looking for to see if anyone has posted anything regarding your questions? It may help until you hear from someone with a similar experience.
I am sorry you have to go through this and you sound like you have a good attitude or perspective on things.
How are you managing with everything?
Let us know and what your outcomes are.0 -
@CMacD what wonderful news the Lynparza has been so effective for you. And I suppose the recommendation for the double mastectomy is grounded in prevention. It must be difficult to make that decision. It's easy for one like me to say "just do it" but when faced with the actual decision not that easy. That said I was just talking to a gal in our community who's struggling with both OVC and breast cancer and it's been pretty tough for her.
But as for the Lynparsa, I was told that there are a handful of women scattered around the world from the first trials on the drug who are still taking it 18 years later.0
