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I don’t know
what to say – or what to think. Kind of
what I felt like a little more than 2 years ago. But a lot worse. I didn’t know the diseases then, but I do
now. Diseases, because there were 2 of
them. Some of you may know, I was diagnosed
with 2 primary cancers in Jan 2020. IDC
Breast cancer (Stage 1, Grade 3) and Clear Cell Ovarian cancer, (Stage
1C). I had a Mastectomy for the former,
and then a Hysterectomy. I did 6 cycles
of platinum chemo (Carboplatin & Paclitaxel) for the OC, which was also expected
to confer some benefit for the BC.
My first post-chemo scan (Oct 2020), showed no evidence of disease (NED) and so did my 2nd scan in Aug 2021. I was grateful to now be considered sensitive to platinum chemo, should I ever have a recurrence and need treatment again down the road – like in 4 or 5 years’ time. Yet I never really felt “alright”. I thought I just needed to give myself some more time. I also had terrible back pains – a bone scan indicated I had degenerative scoliosis and kyphosis, but no indication of any mets to the bone. So, I tried to soldier on. Did some physio, went to an osteopath but the pains kept on and I generally felt drained.
After 1 year of 3-month surveillance checkups, I was put on 6-month surveillance, which made me a little uncomfortable. At my first 6-month checkup in Jan 2022, I was told I did not have to do a scan nor blood work. Had a very hasty physical checkup and that was it. In the meantime, my bloating, constipation, fatigue and back pain kept escalating. My doctors brushed it away, saying degeneration is part of getting on in age and everyone has some degree of issues with their bones.
Before my next 6-monthly checkup with Gyne-Onc (July 2022), I requested referrals for both a CT scan and blood work. I only got them this time because I was having issues with an incisional hernia. My blood work was normal. Shortly after the CT scan, I got a call from Gyne Onc, moving my appointment up by a few days. I was concerned.
I had my appointment yesterday. I’m glad my husband was with me. We were told that my scan showed areas of metastasis. Although I knew all along, I wasn’t really “ok”, to hear that I’m already facing a severe, and possibly multiple areas of recurrence, was a huge blow. The scan found that I very likely have mets to the Liver (multiple hepatic lesions ranging from 5mm to 2cm).
The scan also referenced the presence of lytic lesions within the vertebral body – unclear what these are, but not ruling out mets to the Bones as well. A bone scan has been requested to get a better understanding.
So – that’s my story. ☹ Totally blind sided and still processing. Seems like it always comes in 2s. Two primary cancers and now 2 possible areas of recurrence. The problem at this time is trying to determine whether these are mets from the OC or from the BC. The oncologist asked if I wanted to proceed with Platinum chemo now, assuming it is mets from OC. I need time to think and I want to be sure which disease(s) I am battling this time. I think I would need a biopsy from the lesions in the liver??
More important to me personally, is my daughter’s wedding next month. She is in another province and my husband and I were planning to go up there in a couple of weeks. I want to be there for her in mind and body. She postponed the wedding last year due to Covid and I don’t want anything to ruin it for her this year.
I hope I can get the bone scan and biopsy done and have a plan in place before we leave. I need to be there with her for her special moment. Will come back home and then deal with all the difficult stuff that awaits me. I’m not sure of the prognosis at this time, but I hope and pray I have that luxury of time.
Wondering…Would a bone scan by itself determine if it’s cancer and which one? Is there more in the tool-kit if it is mets from the breast vs ovary? Would a second-opinion from one of the larger provinces be useful (or possible)?Thank you for any advice.