Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Has anyone had treatment in the USA - could you answer some Q's share the experience?
Just wondering if anyone sought and/or had treatment in the USA when Ontario docs told you there wasn't much to offer you? Is it so crazy expensive it can't be contemplated or was there a source of funding from OHIP or private insurance to seek treatment there? We are just an ordinary middle-class couple, with some private insurance over & above OHIP, but we do have equity in our home. Looking at all our options after depressing news last week... Where did you start? I have heard there are more advanced treatments available there. Thoughts? Experiences? Thanks.
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@BellaDonna1959 I believe Annie1950 was exploring support from the Cleveland Clinic in the US and may actually have had some treatment. I'm copying her here @Annie1950 in hopes she sees this message and can respond with her exerperience. There is one other who has her foot in both California and BC and If I can recall her screen name I 'll put the two of you together1
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thank you!
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Hello @BellaDonna1959 - when doing a research on treatments of OC in different countries, including US, I came across a few instances where cancer ablation therapies were used in certain OC cases. I understand Sunnybrook hospital was the first in Canada to have highly specialized cancer ablation therapy machines (Dana-Farber Cancer Institute in US, a world leader in cancer treatment and research, lists those machines in treating certain types of OC). I am seeing my oncologist (a routine follow up appointment) next week and am going to ask about this therapy and who may qualify.0
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Thank you so much. I really need some hope right now - I appreciate this very much.0
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Hello @BellaDonna1959 - just a quick update on ablation therapy - my doctor said that they would not normally treat OC (or any other peritoneal cancers) with this therapy. Sorry for not having any positive news😒0
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Thanks for letting me know - I wonder what 'not normally' might mean? I could ask my onc. Thanks again.
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