Hi everyone, I’m new to this site and hoping to learn and getting some support.
My story began when my period started to become irregular since August 2021. Prior to that my period has been every 28 days on the dot after I had kids. since August, my cycle ranged from 23 days to 40 days, there was one time in 12 days. I didn’t pay too much attention to it, thought it could be a side effect from the Covid vaccine (I had my 2nd dose in July). Also I’m 48 years old, my doctor didn’t think it was alarming. All was good until April 2022, I started to have some mild dull pain on my lower left abdominal area then extended the pain to the back. The pain went away an hour later. It happened again on the next day, same time, same kind of pain, and went away after an hour. This kind of pain happened two more times. On the fourth time, the pain was more intense, but a heat pad helped and the pain went away after a few hours. On May 18, the pain happened again for the fifth time and this time became very intense, I felt pulling, cutting constant pain and nothing helped. The pain was so severe I vomited a few times. My husband call an ambulance and I was sent to the hospital. At the ER, they did a CT scan for me. CT scan found a 10cm cyst on my right ovary and a 8.5cm cyst on my left ovary. The report said possible endometriosis or ovarian cancer with a bit of haziness found in the omentum.
from there I was referred to a gynecologist oncologist and did CA 125 which came back at low normal. I was referred to do an transvirginal and abdominal ultrasound. The report came back inconclusive. The ultrasound found fluid filled cysts with solid components with a little blood flow that caused concern. All along my family doctor thought it was possible to be endometriosis as I had a history of very pain period pain when I was younger that ended up at emergencies. But according to the ultrasound report, the oncologist said it didn’t look like typical endometriosis and I require surgery to remove the cysts along with both ovaries plus full hysterectomy and send for pathology to check for cancer. The oncologist said right now befire the surgery he couldn’t give me a diagnose as both CT and ultrasound were inconclusive even though my CA 125, other blood test and urine test came back normal. I’m scheduled to have the laparoscopic surgery on June 30.
I have no family history of ovarian cancer or breast cancer. Besides the sudden pain that happened those 5 times since April, I have no more pain. Never feel bloated, no frequent urination, no other symptoms.
I’m very sorry for the long post, but this has consumed me emotionally with a lot of anxieties. I can’t help but keep researching which I know I shouldn’t do that, but I can’t control myself. I’m totally stressed out, cry often and lost my appetite. Sometimes I wake up in the morning with panic attacks.
If anyone have similar experiences, I would love to hear from you. I’m extremely worry I may end up with cancer and has already spread. I’m so depressed.