I'm 62 years young, full of life, love and happiness, enjoying my kids, husband and grand kids then 'wham!' told in the ER like 'You need an oil change': "Your abdominal cavity is full of cancer." Since then, a biopsy (results to come), a CT scan - lesions in the omentum and peritoneum (they haven't found the original tumor but suspect ovarian as my CA-125 result was in the 300's. An MRI confimed CT results. Lung CT clear - having a bone CT next week, surgery to debulk cavity and do a hysterectomy tentatively scheduled for April 5th. All along "hurry up and wait...this is urgent and serious.. we can fit you in in a couple of weeks" What???? The hardest part has been and is the waiting...and not knowing what is to come. They suspect at least stage 3, possibly 4. Scary. Any success stories would be a treat right now. Thank you for listening and for welcoming here.
1
Comments
Yes do order By Your Side as kastoyles recommended. It's a very valuable guide from diagnosis through primary treatment and will answer many questions you have now, and will have as your journey progresses. And use the OCC website itself as a source of information to rely on for being credible and honest. There you can find out about the latest developments in treatment, lots of stories about our Teal Sisters, resource and events to tap into. If I can recommend anything to you it's arm yourself with as much information and knowledge as possible so that you can make informed choices about your treatment.
I know how anxious you must feel waiting for each step. Try to take a deep breath. Once they pull together the results of all tests to inform your treatment plan it may sound like long gaps between activities but you'll find it moves like the speed of lightning. And when you have questions in between, or maybe just feel the need to vent, we are all here and with you all the way.
Do think about joining our weekly Thursday live online chats. It's a great way to connect with other members one on one. Or try one of the monthly Teal Teas if you're comfortable with the zoom platform. And if you need any help navigating OVdialogue or even the OCC website please don't hesitate to reach out to me.
Please keep us posted. Know we're here for you when you need us. And know our thoughts and prayers are with you for successful treatment upcoming.