Lynparza/Olaparib

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Comments

  • A trial might be a good alternative....have you contCted princess Margaret in Toronto?  They might be able to giveyou ideas.  It's certainly a crazy unfair world
  • Tell your story to your local news TV.  Reach out...help is out there but you have to make your case be known.  I hope n pray you can get the med
  • Hi @maggiemae... I'm trying to determine from your above post that your treatment has ended and have you discussed the clinical trials or options with the DR team?

  • Hi Flowergirl, Yes my treatment has ended but we don't know yet if I am in remission or not. I've completed 2 surgeries and 2 rounds of platinum based chemo (6 cycles after my first surgery in July 2018 and 3 cycles after my second surgery this past January).  I had my last chemo treatment on April 18th.  My most recent CT Scan 3 weeks ago showed a small remaining area of nodularity but they weren't sure if that was cancer or just scar tissue from surgery.  My oncologist has prescribed Olaparib but I'm having trouble getting it covered.  I've not been made aware of any ongoing clinical trials.  Are there still some taking place for Olaparib?
  • Hi @Courtenay, thank you for those suggestions. I'll give them a try!
  • Hi again @maggiemae
    Please check in with your DR team about this one, or any others that are open in your area. The DR team should be able to chat with you about the options and if you would be eligible:
    https://www.clinicaltrials.gov/ct2/show/study/NCT02983799?show_locs=Y
    There are 4 cohorts and depending on the genetic profile and if one is eligible, and if any of the cohorts are open or full.
  • and here is the info from a previous post from @Marilyn ;

    To gain access to Lynparza, the drug needs to be prescribed by your doctor. The physician or you, as the patient, would then need to contact AstraZeneca’s Patient Assistance Program for information on financial coverage, including coordination of coverage at 1-877-280-6208.  Your doctor should have all this information and know how to go about it.
  • I hope Maggie MAe can be accepted into that trial, looks like a good one.  Flower girl, do you know of any clinical trials for people who have been on lynparza and it is no longer working?
  • Hi @Courtenay
    You can start a search here:
    http://www.canadiancancertrials.ca/
    Trials can be a tricky issue- again, a discussion with your DR team to see what is available in your region and what may or may not be right for your situation/condition/course of action/treatment
    Wishing everyone the best and yes, be vocal with your Dr team about options, what is best for you.
  • Hi! I took Lynparza for about two years with no side effects until I relapsed. Still platinum sensitive though. 
  • I hope Maggie MAe can be accepted into that trial, looks like a good one.  Flower girl, do you know of any clinical trials for people who have been on lynparza and it is no longer working?
  • Hi jule
    Sorry lynparza is no longer working for you.  What are you taking now?  If I recur I  don'tknow what to take next as I'm resistant to carbo.   
  • Hi all
    Has anyone on lynparza  had radiation done on stubborn spots that won't go away?  I've been on lynparza for 19 mo and still have a few spots all less than 2 cm.  It is worrying because not sure how long lynparza can keep things at bay.  
    Hope Maggie got access to lynparza?
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