I have hi-grade serous diagnosed in Jan 2021. Four chemo, then ovaries, fallopian, uterus, omentum and appendix removed, followed by two more chemo. CAT scan after that showed two nodules in abdominal lymph system, but everything else was gone. Oncologist said the lymph nodules might not be the cancer. Started maintenance dose with niriparib, but platelets and white blood cells dropped so low that transfusions were required and maintenance drug discontinued.
Now in wait & see, surveillance, hurry up and wait - whatever you want to call it. I I'm feeling quite anxious and finding the lack of contact with the oncologist very difficult....I don't want to pester them, but I would like to better understand if the lymph system is cancer, how we would determine this, and what the next steps are. They have said we will talk in late January, but end Oct to end January seems an eternity. Am I "no evidence of disease" or not?
Hard to understand for me and hard to explain to friends and family, too, who want to help.