first cycle of IV taxol, and Carboplatin IP on October 26.The treatment itself was ok other than the IP part where I couldn’t go to the bathroom following prolapse surgery where they pump you full of fluid. Had to use a bed pan which felt very humiliating for me. Wondering if anyone with IP treatment had any advice.
I was given olanzapine for breakthrough nausea and dexamethasone the flooring two days for breakthrough nausea. Olanzapine didn’t work! Was vomiting every 1 hour since 3am. Couldn’t even hold didn’t water. Had to wait until I could reach the nursing line at 9 am to get a new prescription which for now seems to be keeping the nausea to a lower level and I can eat. I have also noticed a rash on my cheek and my face feels hot this morning.
Did anyone develop a rash like this. Are this reactions an indication that a dose reaction is necessary?
Thanks in advance for reading this long note!
I'm sorry to hear of the challenges you've faced coming out of your first cycle of chemo. None of what you've described is unusual but not necessarily applicable to everyone. Our bodies react and respond to various treatments quite differently. So some of what you you experience may be mirrored in someone else's story but not everything, some other symptoms applying to someone else. The face rashes and flushed feeling is common by the way. I've experienced it myself in earlier rounds of chemo I've gone through. The skin issues come and go. For me they did disappear over time. If it's bothering you, your cancer care team can probably suggest some creams to lessen the sensations if needed. Or perhaps an antihistamine.
I can tell you that the severity of what you feel is often a combination of what the side effect is, coupled with it being the first time you've experienced any of it. Over time it often gets much more tolerable, even disappears. The key is ensuring your oncology team are kept aware of what you're experiencing and the level of intensity so they can adjust the drugs or add or replace others to ensure your experience is as comfortable as possible. Sometimes it can take a few treatments to get it all right, so do try to be patient. I know that's often easier said than done.
As for your BP, fluctuations are normal for many. Again, make sure your cancer care team are aware. And don't be afraid to ask questions or make suggestions, the responses to which may help relieve any anxiety you may be feeling.
I do hope your post chemo effects regularize over time and the entire process becomes more comfortable for you. More so that the treatment achieves the desired effect. Please so keep us posted and always reach out anytime there is anything we can help with.
Big hugs for now,
I have been keeping track of my symptoms and side effects, along with weekly phone calls to the nursing team and chemo pharmacists to let them know what is going on.
You are doing all the right things. Keeping a journal, keeping your cancer care team informed combined with weathering the storm as best you can while remaining optimistic things will improve will get, I'm sure, get you to where you need to be. The worst is usually at the front end and it just gets better as your care team sees how your body responds to treatment and adjusts accordingly. It sounds like this is the case for you.
Keep us posted. And for more immediate response to any questions or concerns, you're always welcome to join our live chats on Thursdays if and when convenient to you.
Big hugs for now,