Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
PERINEAL AND PELVIC REHABILITATION AFTER CHEMO
Hi. I'm Grace. I'm not sure I'm writing in the correct space but I haven't seen this information anywhere else. I'm not new here, but I've been absent for a while. I had 3A ovarian cancer one year ago and I got a full debulking. After the chemo treatments finished, I was left with continuous pain in my abdomen & pelvis. I was unable to do much exercising due to pain and fatigue, of course. Well, one year later, my pain was still pretty bad and no one had an answer. I was also in pain at the port site, with horrible shooting nerves all the way down my right side. I finally found out that there is physiotherapy for us! Yes, for women who have had a hysterectomy or total debulking or any type of pelvic trauma. I'm in Quebec, so I can add a link to a clinic here that will explain it. What they do is give you exercises to stretch, yes, but they also work to stretch the internal muscles. The first meeting, my physiotherapist worked out the pain where my port was located. Finally, some relief. We have been working together to strengthen my muscles. I must warn you that they work both outside and inside the body and a vibrator is suggested to stretch those muscles on your own. I have found much relief from getting this specialized physiotherapy, I hope this information helps someone else, like it helped me!
https://physioextra.ca/en/perineal-and-pelvic-rehabilitation/
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Comments
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Hi Grace @mazzg
Welcome back and thanks for sharing what you've discovered as helpful to a situation like yours. We don't endorse anything here but it's great to get this information that allows our members to check in with their own cancer care teams for applicability to their own situations. It would be interesting to know if any of our other members have used these techniques. If I recall there is a physiotherapy clinic close to me that offers the same or very similar service and that's here in Ontario.
So glad though you are recovering and finding relief for any discomfort that was left post treatment. Keep up the healing and keep us posted on your progress.
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