Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
ATHENA clinical trial
i have just completed the treatment phase of this trial and am now being monitored. I was wondering if anyone else was on this? I would highly recommend clinical trials. I was diagnosed 3 years ago with stage 3... went through the operation, debunking, 6 rounds of chemo and then immediately joined the trial. So far so good. If anyone has questions about this please feel free to ask.
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@Joanne it's wonderful and encouraging when we hear about successes from clinical trials. You are indeed fortunate you met the criteria for participation and at a time they were recruiting participants last year. It is though important for our members to remember this was a trial, not yet an approved treatment protocol, so not something we can choose or insist upon as a treatment protocol yet.
I too had a long term benefit from a trial back in 2018/19 using Olaparib. So I agree, the potential benefits if a trial is offered/available, is something to seriously consider. Your cancer care team will help assess any risks against possible benefits.
If anyone is interested in knowing more about Athena, here is a fairly easy to read description. https://www.onclive.com/view/athena-trial-of-maintenance-rucaparib-nivolumab-in-ovarian-cancer-completes-target-enrollment
Joanne, I too was keen to find others on the trial I participated in, if for no other reason but to compare effects and results. So hopefully there may be members of community who did also participate in Athena and will reach out to connect with you..
Here's to your continued success with your treatment.......
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