OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis ([email protected]).
I was wondering if any of you had a regular gynaecologist do your surgery OR you had to wait for a Gynaecological Oncology Surgeon to do your surgery? I’m on the west coast and was referred to our BC Cancer Agency back in April. After 2 chemo sessions I finally got an appointment with a surgeon. I was so excited to finally hear about my surgery date because my CT Scan showed excellent shrinkage, all ascites gone, organs are normal and my CA125 markers went from 297 in May to 35 mid July. My Oncologist was very happy with the results & was going to book me for post surgery chemo after my 3rd chemo. BUT when I met with the surgeon, I was told that there’s a 4-6 week surgical wait list ( my jaw dropped & my eyes teared up) I couldn’t believe what I was hearing! I should’ve been on this wait list months ago. They felt I might as well get a 4th chemo while I wait. There’s 8 Gynaecological Oncology Surgeons in B.C. Maybe I should get an experienced Gynaecologist to do the surgery, so I can LIVE?! I get the feeling that people don’t die of the cancer, it’s from the waiting of needed surgical treatment. I’ve lost all hope! Our medical system is overcrowded and spread very thin.
I can see a surgical wait list for knee or hip replacement but not for Stage 3C Ovarian Cancer!
Sorry I had to vent, I’m at wits end. I’ve been very patient until now. I’ve been looking into my symptoms since January and now it’s getting a bit too much to handle. I feel lost in a queue.