Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis ([email protected]).
OVdialogue – consider joining our team in the role of Peer Support Volunteer. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis ([email protected]).
Books, Websites and Resources
Comments
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Thanks @KarenMari53 - I noticed that they have added for the Mister under the Hystersisters site.
http://www.hystersisters.com/
http://www.misterhystersisters.com/
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It is easy to get caught up in information overload... a reminder to review the source and look for reputable sites and programs.
Do you have your copy of By Your Side or Still By Your Side? You can order one here from the OCC website:
http://ovariancanada.org/living-with-ovarian-cancer/support-resources
@DeltaRed
It is helpful when you need to review medical details in the glossary, information on Ovarian Cancer, a list of books and organizations that can help.0 -
Hello everyone - there is an upcoming webinar series by OCC on Genetics... the first session starts March 01
http://ovariancanada.org/events-support/go-online-for-support/webinar-series
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Yes it's easy to get caught up into the realm of info overload! Luckily I've had genetic lab test and found I'm negative for brca 1/2 mutation.0
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Here are a couple of books listed in the bibliography of By Your Side and Still By Your Side:
You can order these guides at: http://ovariancanada.org/Living-with-Ovarian-Cancer/Support-resources
Cancer is a Word Not a Sentence: A Practical Guide to Help You Through the First Few Weeks. by Robert Buckman. Firefly Books, Buffalo, New York
Chicken Soup for the Soul: Stories of Triumphing over Life's Obstacles. Health Communications
Kitchen Table Wisdom: Stories That Heal. R.N. Ramen. Riverhead Books
It's Always Something. Gilda Radner. Simon & Schuster, New York, NY.
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Hi Everyone
Coming up soon on Cancer Chat at de Souza Institute:
You can find out more here:
https://cancerchat.desouzainstitute.com/loginThis is an online educational support group for all cancer patients and survivors with any diagnosis and stage whom are having chronic problems with sleep (insomnia).
Participants will be asked to track their sleep patterns in an online diary for 7 days for each week the group is in session. Participants will be provided feedback by the facilitator on improving their sleep each week.
This is an educational support group with weekly skill building topics based on a published cancer manual on sleep. Weekly chapters are delivered to your inbox which may take up to 30 minutes to read plus extra time for the exercise in which participants can complete at their own pace prior to each weekly session.
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Hi everyone
I listened to one of the webinars from this site
http://healingandcancer.org/events/
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This site offers some great online support sessions. You can sign up to receive the notices and you'll get an email when they become available. Times, dates and topics vary throughout the year.
Starting July 6th - there is an online support session for dealing with Fear of Recurrence.
More details can be found here:
https://cancerchat.desouzainstitute.com/users/register/66
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And there is a survivorship survey until JULY 27th if anyone is interested
https://surveys.hkperspectives.com/s3/sdfalj135hj-EN/
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And it is short and anonymous0
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The previous one was not ovarian cancer specific - however here is another one that is:
https://ovariancanada.org/stories-and-media/research-stories/2015/ovquest-seeking-survey-participants
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For those of you in Ontario- This is open for registration:
https://cancerchat.desouzainstitute.com/users/register/68
For others you can sign up https://cancerchat.desouzainstitute.com/ and you will receive notifications when new webinars begin.
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And this link will take you to other resources as well
https://cancerchat.desouzainstitute.com/resources
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For those of you interested, please check out the survey at SurvivorNet before JULY 27th
http://survivornet.ca/news/take-our-cancer-survivorship-survey/
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Hello all, this radio clip from CBC (Brian Goldman, “White Coat, Black Art”) focuses on cancer coaching. Having experienced the benefits of this practice (from the Ottawa Cancer Foundation, where they made the doc), wanted to share the link. It’s a great (free) service. I hope that more of thesecoaching services will spread through our provincial and regional cancer networks:
https://www.cbc.ca/radio/whitecoat/how-cancer-coaches-help-patients-navigate-an-overwhelming-diagnosis-1.4878003
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Hi everyone - sorry for late notice - this is tonight if it works for you:
https://register.gotowebinar.com/register/1989534799851828747
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You can view many past webinars here also:
https://survivornet.ca/connect/news/
There is one tomorrow on Cancer and Heart Disease - hoping to join it0 -
Art Therapy Online Session starts on MAY 1
https://cancerchat.desouzainstitute.com/users/register/84
This was an excellent resource I was able to access a few years ago!0 -
You can receive newsletters/emails for upcoming articles/resources - be sure to look at the Canadian Version
https://www.curetoday.com/articles/study-asks-are-women-missing-out-on-brca-testing?eKey=&utm_medium=email&utm_campaign=CURESS%20Ovarian%20CC%20eNews%20%20Lynparza%20AstraZeneca%20%208-20-19&utm_content=CURESS%20Ovarian%20CC%20eNews%20%20Lynparza%20AstraZeneca%20%208-20-19+CID_61a8f2732b76398b0d411646324dfa87&utm_source=CM%20CURE&utm_term=Study%20Asks%20Are%20Women%20Missing%20Out%20on%20BRCA%20Testing
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A while back - someone asked about scheduling websites - to engage your community or support groups with help and assistance....I found this pamphlet at my local resource centre -
www.mylifeline.org
It is USA based
Hoping for something Canadian based and focused
there may be other types out there so it is worth a look around if this is something you are interested in, or perhaps someone has another source to share.0 -
A few new articles on the recent updates in Ovarian Cancer world:
https://www.curetoday.com/articles/unique-genetic-change-found-in-rare-ovarian-tumor-could-spare-patients-from-unnecessary-treatment?utm_medium=email&utm_campaign=CURESS%20Ovarian%20CC%20eNews%20%20Lynparza%20AstraZeneca%20%202-20-20&utm_content=CURESS%20Ovarian%20CC%20eNews%20%20Lynparza%20AstraZeneca%20%202-20-20+CID_7bc6c6cabcf07e694fa399ccfa2ba727&utm_source=CM%20CURE&utm_term=Unique%20Genetic%20Change%20Found%20in%20Rare%20Ovarian%20Tumor%20Could%20Spare%20Patients%20from%20Unnecessary%20Treatment
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And this one is a great article about PARP
https://www.curetoday.com/publications/cure/2020/winter-2020/an-expanding-role-for-parp-inhibitors-shows-promise-in-treating-ovarian-cancer
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I just found this if it is of help to anyone during this difficult time
https://www.mindbeacon.com/strongerminds?utm_campaign=Stronger%20Minds&utm_source=GSC%20Plan%20Member&utm_medium=English
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