Books, Websites and Resources
Flowergirl
Mod Vol
It is easy to get caught up in information overload... a reminder to review the source and look for reputable sites and programs.
Do you have your copy of By Your Side or Still By Your Side? You can order one here from the website. It is helpful when you need to review medical details in the glossary, information on Ovarian Cancer, a list of books and organizations that can help.
Do you have your copy of By Your Side or Still By Your Side? You can order one here from the website. It is helpful when you need to review medical details in the glossary, information on Ovarian Cancer, a list of books and organizations that can help.
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@Flowergirl thanks for posting this discussion and talking about By Your Side and Still By Your Side!
and http://riskygenes.org/
There is also The Screen Project: A Canada wide BRCA study for men and women.... http://thescreenproject.ca/?gclid=CjwKCAjwxo3OBRBpEiwAS7X62USqaYjDrvQUxQmGWtudlXxEJT_-Dbr5WW_3z23bM4sYIiQtVnVxrRoC_0YQAvD_BwE
You can also view their calendar and make contact to get on the email list to find out when new sessions start.
If you’re looking for a book that deals with the psychological and emotional aspects of cancer, I highly recommend reading Paul Kalanithi’s bestseller, When Breath Becomes Air. At the age of 36, on the verge of completing a decade’s training as a neurosurgeon, Kalanithi was diagnosed with inoperable lung cancer. One day he was a doctor treating the dying, the next he was a patient struggling to live. The young doctor’s autobiographical account, published after his death, is both poignant and well-written.
If you haven’t watched it, I suggest Cancer: The Emperor of All Maladies based on the Pulitzer prize winning book by Dr. Siddhartha Mukherjee. This documentary was on PBS last year and is one of the best shows I’ve ever seen on the subject of cancer. I love how Mukherjee and producer Ken Burns skillfully interweave the scientific, historical and political aspects of the disease.
By Jean Lamantia and Neil Berinstein
https://www.chapters.indigo.ca/en-ca/books/the-essential-cancer-treatment-nutrition/9780778802983-item.html?mkwid=s_dc&pcrid=197537908517&pkw&pmt=b&s_campaign=goo-DSA+Books+Best+Sellers&gclid=Cj0KEQjw09zOBRCq8_7Xr7OG57QBEiQAfxcXVmbYrPudz8ttZPs6fMf25uWVzsReM9cjCw48ArxD7xMaAi8f8P8HAQ
thank you @CurlyHair - great reminder on where to look for the trial information
http://ovariancanada.org/events-support/go-online-for-support/webinar-series
In the discussion about "How can family and friends help", someone asked if there were any online resources to help plan and organize practical help and support. There are 2 websites that I know of that have an online scheduling component to them as well as a mass communication vehicle that you can use to keep multiple people updated about your situation. This can be particularly helpful during a time of surgery and/or treatment. Here they are:
caringbridge.org
lotsahelpinghands.com
My family actually used caringbridge.org during the illness and recovery of a family member and it worked really well. We did not use the scheduling component.
Do you know of any other resources like this to add to the list?
we sometimes use doodle.com
Has anyone used the Live Better with Cancer website? You can check it out at https://livebetterwith.com. I wasn’t really aware of the organization until one of their staff members contacted me, she had stumbled across my personal blog. The company is based in the United Kingdom, but it’s international in scope. Live Better seems to have an extremely wide selection of products to help cancer patients during treatment and recovery. The site also offers lots of practical advice in the form of blogs by people living with various types of cancer.
http://www.virtualhospice.ca/en_US/Main+Site+Navigation/Home.aspx
I found some really good comments and suggestions for the person impacted, for their families or supporters.. also noticed there is an upcoming KidsGrief Q&A Webinar on January 18 @ 1:00 PM ET - visit http://kidsgrief.ca/
Go here to create a log in and user name - you can sign up to get alerts.
https://cancerchat.desouzainstitute.com/login
- Expressive art group starts Wednesday, January
24th (no experience necessary)
- Fear of Recurrence starts Tuesday, January
23rd
I really enjoyed the art therapy session and the session on recurrence provided helpful support as well. These sessions are during day hours, it is all on remote via internet/chat/webinar and is hosted by designated professionals.http://ew.com/books/2018/01/03/spouses-late-memoirists-fall-in-love/
Wow - very interesting ... going to try and read these books over the rest of the winter.
oh, and I so could relate to the purchase of the couch!- follow those links in the article to read more if you like.
Hi @Flowergirl thank you for posting this incredibly interesting link. I’ve read When Breath Becomes Air and intend to read The Bright Hour in the near future. It definitely shocked me to learn that Paul Kalanithi’s widow is currently in a relationship with the widower of the author Nina Riggs. I was completely unaware of their romance until now. I like what Lucy Kalanithi says about their relationship. “I’m surprised by how ridiculous it is and how natural it is at the same time.”
And I am in a good facebook group though most of the women are American, but they are from all over the world too.