@mother42275 and @Marilyn
Mother42275 - as I read and re-read your post I am first struck by words like “stage 4” and “incurable “ and “buy some time” and “Palliative Care”.
Then the emotions "scared", “fear” and “sad”. "Cancer Sucks!" (Amen sister!)
But it is your actions that really stand out for me.
- Intentional Extremely intentional.
- Let nothing stand between
- Seize the day! (Carpe Diem)
- Have (a strong faith that) brings (me peace)
Wow. What an inspirational message. A raw, honest, and powerful expression of the journey you and your family are on. Thank you for sharing your story and your hope and your peace. That is what stands out most for me!
I, too, am declared palliative. I was just last week meeting with a palliative care oncologist - an amazingly positive experience. Palliative is literally the human condition, it is the time of your life between now and your death. We are in a sense, all dying - it is after all a guarantee of our human frailty. However, when you wrap it up in a "diagnosis" it takes on a greater than intended immediacy, I think.
I, too, am a woman of deep faith. I live in a fluctuating peace and the fear and anxiety that comes into my life now is a tool that I use to point me back into the peace. It does not buffer me from the pain, the fear, the anxiety, but it gives me such an anchor to ride out the storms of my emotions until I come back to rest in the peace.
May the peace and grace and hope that is the Christmas celebration surround you and your family. Many blessings.
@mother42275 Thanks for your inspiration and encouragement. I am under the care of a palliative Dr. who is quite is amazing! My children are grown, I can't imagine having 4 teenagers in this situation. It is a small consolation that it is not genetic.
I put my hope and trust in Jesus and pray for you and your teens.
@VSC if you look at the recent thread about Liposomal Doxirubicin (Caelyx), we were just discussing the rash/peeling skin effect of Caelyx that happened for a few of us after the third cycle. Otherwise for me it was mostly nausea (maybe carboplatin related) and fatigue. Hope you get neither side effect!
Did you find the support group out of BCCA in Vancouver? For “Women with Metastatic Cancer” - ominous name, but kind and lots of positive energy!0
@VSC I am sorry to hear that you are having nausea - that can be one of the worst side effects of chemo. Hopefully you have called the chemo unit and asked about treatment? I know the aim is for NO nausea, and there are lots of treatments available - pretreatment with aprepitant, and dexamethasone, ondasetron, olanzepine after chemo have worked for me when I had nausea with chemo. There are others too if those don’t work. Good luck finding the solution that works for you:-) j
@VSC My oncologist prescribed Dexamethasone and Ondasetron to be taken 1/2 hour before chemo and the Ondasetron 12 hrs after the first dose. Both the drugs morning and night for 2 to 3 days afterward. These two drugs are used to prevent nausea from occurring. I’ve only had one round of the carbo/dox so it’s probably too soon to really know but so far no nausea.2
I am on both of those, but prescribed differently. I take the Ondasetron and Dexamethasone 30 minutes before the treatment, then 4 more Dex 12 hours apart. I was prescribed prochlorazine my first time on chemo, but didn't really need them, so I have them now. I should be feeling a lot better tomorrow.1
Hi @JaneWest. I was diagnosed Nov 2017 3C serous. Had 11hr debulking surgery (large mass and lots of spread). Had an ileostomy and 6 rounds front line chemo. Was NED in April, had ileostomy reversal and given the all clear. Dec 2018, CA125 started climbing and CT in Jan showed reoccurrence and a tumour on my liver. So back to chemo and I am now 1/2 thru second round. So far, so good, as responding and CA125 trending down. CT next month of tumour to see if its shrinking. Was devastated by first reoccurrence (more than initial diagnosis) but have hope seeing others battle back again and again. Approaching this like a chronic disease for me is helping. Remaining stable and symptom free is paramount for me now.0
Hi @adfab I’m new to the community as my mom was just diagnosed with stage 2 (unofficial) as we still waiting for lab results.
She has completed her first debulking surgery and they have managed to remove all visual lesions. She is currently in recovery and awaiting chemo (6 sessions to follow).
She also had an Ileostomy. We’ve been a bit surprised by a need for a stoma and so feel like we could really use some advice by those who have experience.I’ve read many articles regarding what foods to eat and which to avoid. Do you have any other pro tips or good advice to share ? Anything to help with healing and the recovery process perhaps ?Truly grateful to have a community like this0