Hello and Happy Monday
I want to say thanks to all who have put this site together. I see on FB and IG that there are very many sites for OV in the USA. It would be great if we can post more on the Ovarian Cancer Canada site. It seems we are not allow, is there a reason why?
I was diagnosed in March of 2019 stage 3 Ovarian Cancer with a high grade of Carcinosarcoma. I was operated at the end of March and the tumor was huge. But I had one amazing surgeon - Dr. Bouchard- to me she saved my life. With that came 6 rounds of chemo and I agreed to sign up for a new study Dr. Lheureux was doing.
Well fast forward and I am coming to the end of my study ( this June 2021) and will stop taking my pills in Sept 2021.
I live in a small town (Palgrave - Caledon, Ontario) and would love very much to begin some sort of support group/awareness for Ovarian Cancer and of course for anyone struggling with Cancer, even caregivers, children, etc too. They are the rock for us when we are going through this ordeal.
If anyone has any suggestions on how one gets started and the steps we need to take - I am all ears!! I thank you once again for allowing me to join.
Take care and be safe.
Welcome to OVdialogue. I'm happy you found us and delighted with your interest in engaging in more support to our membership. Very sorry to hear about your diagnosis, as we always are to hear of one more with this disease. But it sounds like you are in wonderful hands and everything is under control for you. That's the great news about all the advancements we've had recently in treatments, and new clinical trials that are truly enabling us to live longer and better lives.
I'm not quite clear on what you mean about posting from the US sites. Is your intent to just point our membership to these other sites, or to import their discussions here? Or am I misunderstanding the question totally? I'm in the middle of recurrence treatment so the old brain cells aren't as quick off the mark as they usually are right now LOL. Please clarify for me and I can then give you an answer to your question.
As for setting up a support group for your area, that's extremely kind of you to even think about it. You are correct though. These local groups where survivors can connect in a safe place to share information and talk about feelings and fears and celebrate there success is invaluable. A few suggestions for you, having explored doing something similar out where I live in SE Ontario. I hope this might be helpful to your thought process, and if you decide to go ahead with something we can talk further, perhaps looping someone in from OCC for additional advice and guidance.
Just a few things to think about while we all wait to be able to return to some normalcy.....whatever that might mean. Do keep in touch and let me know how you progress in your thoughts. In the meantime, just sharing your own experiences with our members as they reach out for assistance or support or encouragement..or sometimes just someone to listen ...is extremely helpful and I invite you to do that whenever you feel you can offer some support. And reaching out for your own needs is important too. We're always here for what you might need.
Take care, stay strong and glad we are getting out of this Covid crap!!! I am seeing the light.