Lymph Nodes - recurrence

Hi all, I hope it's OK I made a new discussion topic, as I did a search and didn't find much on what I'm looking for.  I've posted on here a couple of times but have been reading along the way.  My mom was diagnosed with stage 3B OC in 2017 (brca neg).   She has just had a CT and was told it's likely a recurrence as the doctor see several enlarge pelvic lymph nodes.  We are all sad about this, as she's been doing so well with 3 years of NED.  Like everyone, we were so hoping it just didn't return.  So, he has told her she will likely be looking at chemo, maybe surgery.  I'm worried for her, especially now with this awful Covid in the mix.  

Has anyone had treatment for this type of recurrence, or had heard of this recurrence type?  I know everyone recurs differently so not sure where to get some help, or support while I wait to speak to the oncologist myself.  Can lymph nodes enlarge for any other reason?  She has been under a high amount of personal stress and I wonder if that could at all be related instead of cancer.  

Thank you, all the best.
Luci

Comments

  • Hi Lucy @Luci22 as @Fearless - Vol Mod mentioned I'm also facing a recurrence in my lymph nodes. My treatment plan has been evolving and has changed a couple of times, something we need to deal with having a chronic disease. 

    One thing you might ask about is possible radiation, if the recurrence is in just the lymph nodes. Apparently this is a fairly recent treatment for OC, but has been used with success (at least according to my radiation oncologist). 

    I'm going to have radiation this week, with the hope that it will help delay a return to chemo for a few months as I only completed my initial treatment last May. I'm optimistic about it as I don't have any symptoms, at this time, and would like to enjoy the summer if I can. 

    Certainly dealing with cancer during covid is both challenging and stressful. You don't mention where you're located but most areas of the country have great support networks and perhaps your mom might be interested in connecting with something like that.  Personally I have found both yoga and meditation to be very helpful in dealing with cancer and covid stress.

    As our moderator has said, there's lots of support and ideas available Thursday during our weekly chat. Don't hesitate to reach out if you or your mom have questions, we'll definitely try to help.

    All the best!

  • @Readersmaven thank you for replying and for the good information.  I will ask about the radiation, hoping I can speak to the oncologist this week if he calls me back  It is a hard reality and we were hoping it wouldn't recur but here we are.  Covid has really put an additional fear into it all.  She will get her first vaccine on Friday, the Pfizer one.  

    I keep asking myself, is there a chance it's related to stress?  She has been under a lot of personal stress and I had wanted to know from the doctor if that was a possibility.  The lymph nodes are enlarged in the retroperitoneal (pelvic) area.  They said it's a small area for now.  He only mentioned chemo and maybe surgery, but he didn't mention radiation.  I hope he will let us know all the options.

    Would you mind sharing where you had your lymph node recurrence?  You mention radiation so I assume it's also a small area.  

    thank you so much for the support.  I appreciate it.  Good luck as well with your upcoming radiation treatment.  
  • @Luci22 my enlarging lymph node is in the periportal region. This is just under the rib cage where the liver is located. 

    Radiation oncologist said that he would radiate up to three lymph nodes but so far its only one. 

    Good luck to your mom, think of this as a bump in the road...take care if whatever is going on and then "carry on ". It's all we can do. 

    Please let us know how she gets on, we all learn from each other! 
  • Hi there, we had a follow up with the oncologist but I'm still confused.  So far there is no treatment date set.  Apparently the lymph nodes are slightly enlarged and it's "likely" a recurrence. I didn't get a sense of urgency but when there's a probable recurrence, isn't it all about treating it "the sooner the better?"   We are on wait and see and another CT will be done.  I'm wondering why wait? I didn't get a chance to ask.  I know everyone is different but has anyone had a similar experience to wait and see and why? 

     @Readersmaven I asked if radiation was an option but he said no.  I'm not sure why the answers are different.  Can I ask where you receive your care or the rational for radiation?  Still confused overall. 

    Thanks to anyone for your feedback.
  • @Luci22 I'm in Kitchener and received my radiation in London. I wasn't aware initially that radiation was a possibility for ovarian cancer. 

    I would ask more questions, if possible. My lymph nodes were enlarged and they said this likely was a recurrence, so very similar situation. The original plan was to do high dose radiation every other day for a total of 5 treatments to see if this would stop them from growing bigger.

    Unfortunately, 2 additional spots were discovered, so I had 5 daily lower dose radiation treatments for pain management. Just finished on Tuesday. Will have another scan mid June. I decided on this course as the 2 spots haven't been growing aggressively. 

    I understand that an initial reaction is to immediately want to treatment, but apparently taking a wait and see approach is very common. It's all what you are comfortable with. My oncologist said if I decided I wanted chemo just call and she would set it up. 

    I don't think your wrong to ask again about radiation, for me it was very easy, no side effects at all and I'm hoping it will help delay return to chemo. 

    Hope this helps...may be too much info, or more than you asked!
  • Thanks @Readersmaven for your reply.  It is helpful to know and sounds very similar to my mom's case.  I wish he hadn't dismissed the idea so soon.  I wonder is it rude to ask him again or to ask for a second opinion at another cancer centre, such as in London.  I suppose it would also delay things going back and forth or I worry it would offend the oncologist.  Last thing you want to do is offend the one who is treating your family member.
  • @Luci22 I don't think it's rude at all, you could frame it around seeking more treatment options. A good doctor/oncologist shouldn't have an issue with a patient asking questions.

    My "journey" to this treatment wasn't fast, scan was in January, had another scan in March which uncovered 2 additional spots. So there was no urgency in treatment, mine is not aggressive, at this time. 
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