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  • hi @Flowergirl I’m doing not too bad. Got scan results and there’s a slight increase in my recurrence. No chemo plans yet coz they don’t want to give me treatments yet to affect my immunity based on current world events. As well the scan shows kidney problems with my right kidney (moderate hydronephrosis) which is basically a type of blockage of urine. So I’m being referred to urology. Feel like either running a mile away, or just burying my head in the sand. Anxiety is thru the roof and I’m trying distractions to try to help myself get thru this.
    has anyone here experienced hydronephrosis, and if so can you share your experience (either here or a private message) would be appreciated.  Stay safe everyone, and God bless 🦋
  • MarilynMarilyn ✭✭✭
    HI @Linda
    So sorry to hear about your situation and that treatment is being postponed for the moment.  Although it does sound like they want to address the problem with your kidney.  I understand the feeling about either wanting to run away or hide in the sand!  So hard to deal with all that is going on for you and in the world!

    I think that if you post your question on the main discussion page that more people might see it versus in the Teal Tuesday chat.  Maybe you could post in the COVID 19 discussion or start a new one about Hydronephrosis?

    I am about to write a post about a session we are setting up for "Ask an Expert".  We will be asking people to send their questions and then we will get the answers from the appropriate expert.  Do you want to send me a question to include in this?

    @Flowergirl - I will be discussing this you too...

  • thank you @Marilyn I’ll take your advice and post a general question entitled Hydronephrosis to see if anyone else has experienced this. This will also allow me to add updates there as I go through this journey with the urologist. I’ll also give some thought to a question for “ask an expert”. Thanks so much 🦋
  • hello everyone - I hope you are all managing as best as can be during these complicated times

  • @linda @beachgirl @jobo @sdwway @Tinazzie .... how are you all doing so far?
  • Hello @beachgirl - thank you for your post
    I was diagnosed  Stage 3 C high grade serous April 2015, then Surgery June 2015, Chemo ended December 2015
    I was NED for about 2 years - then on Olaparib for 8 months - then chemo again - a break and then another 6 rounds chemo
    Hope you are managing well!
  • Hello @flowergirl - thanks for your reply. My heart goes out to you! You are such an advocate on this site .... My prayers are with you - you are a strong and lovely soul.  I am sending you lots of Strength  .... Stay Strong.  

  • Hello @Flowergirl - thanks for reaching out.  

    My pathology results from the hysterectomy are now ready and I have an appointment next week at the cancer clinic to review the results and discuss recommended (chemo) treatment.  I'm very nervous.  It appears to be more serious than originally anticipated.  The surgeon has advised it is a stage 2 grade 3 clear cell carcinoma.  I'm not sure what I should be asking the surgeon when I go in.  Any tips?

    I also wanted to, but forgot to ask about the peritoneal flush results.  Have any of you tested positive for this?  

    So many questions...so many worries.
  • Good evening everyone 
    I hope everything went ok for you @Tinazzie... were they able to provide you with a treatment plan?
  • FlowergirlFlowergirl Mod Vol
    Hello to everyone recently on the chat - I hope you are all managing well and able to get the supports you need at this time. Check in when you can to let us know how you are doing today. Nice to see some new posts.
  • FlowergirlFlowergirl Mod Vol
    Hello everyone - welcome and I hope you are all still finding a way to manage during these changing times!
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