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Here the wind has finally stopped so it is enjoyable outside.
Hope to connect with you all on Thursday or I'll be "viewing in".
It is nice to see all the new participants finding this support... there is a lot to catch up on throughout the site... hope you are doing well and enjoy the rest of the evening!
Tuesday's Tip... if you are searching for information on a specific topic, use the Search Bar at the top right
You can also click on the Categories and review past posts.
Hope you are having a good evening and if you are available to join on Thursdays, the first daytime session will be happening.
As always, the site is open 24/7...
I'm happy to see you reaching out here. You'll find many of us in or having experienced similar circumstances as you. It's great to hear you're responding well to treatment and the end of the cycle is within reach now. Like you, I have had to learn to live with this disease. My recurrence is not curable but, given so many advances in treatment the past few years, it is manageable. Lots of things have changed in my "normal" but I'm actually finding my new normal far more rewarding and exciting.
As for the Lynparza/Olaparib, I have been on a clinical trial for almost two years now. The drug has been approved for maintenance post treatment where patients are platinum sensitive and BRCA positive. My situation a bit different. My trial was intended to assess the impact of the drug on a recurrence and in a patient who is not BRCA positive, but does have an HRD gene mutation..which I have. I can tell you what I joy it is to take my two pills twice a day. Everyone, like any treatment, responds differently so I can only share my own experience, which has been very positive on the drug. It happened to shrink my recurrence by 75% in the first 5 months and then has stabilized me for a little over a year more. RIght now we're noticing it's efficacy lessening so I'll probably be off the drug by the end of the year. But it has kept me out of more aggressive treatment now for almost two years and extended the quality of my life more than I would have expected. As for side effects, I didn't have much in the way of the expected effects. A wee bit of queasiness from time to time and some fatigue; both very tolerable in the grand scheme. The only rough effect was severe muscle spasms and joint pain at first. But that was quickly and effectively addressed by a small lowering of my daily doseage.
If you want more information on the drug, just type in Lynparza or Olaparib into the search button at the top and it should give you other discussions on the topic to review.
Good luck with the last of your chemo. If Lynparza is the maintenance drug they suggest, I hope your experience is as favorable as mine. That said, there are a few even newer drugs out there, mostly in trials that might be explored by your medical team. So much progress to help us all live longer and better lives with this disease.
Please let us know how you're doing and if there is any thing more we can do to support you.
I'll be popping in and off the site tonight - involved in some outdoor tasks and, if you are into the sports, hockey is back!
Reminder that "chat together" also happens now on Thursday afternoons!
I'm back to my outdoor tasks until the sun goes down - and then more hockey tonight!
Hope you are doing well this evening.
We had had so much wind on the prairies, the nicest part of the day is now the evenings!
I'm sure everyone is trying to soak up the last bits of summer.
Reminder chat is also now daytime on Thursdays, as well as 24/7 - There are so many topics and good discussions her - thank you everyone for sharing your experiences and the support!
Be safe and stay well; sending hugs of hope across the internet!
Another fabulous hot weather evening here on the Prairies. A quick check in from me today. I'm day 3-4 post chemo and not feeling the greatest.