Hello teal sisters. I'm feeling really discouraged so I just need to vent. I finished first line chemo on Sept 24 - was so happy to be over that hurdle! Unfortunately, the CT follow up scan shows possible progression of disease. There is nodularity and edema in the pelvis suggestive of metastatic peritoneal disease. My CA-125 was 37 post surgery and 40 post chemo. My oncologist is not sure, as the images don't appear as bad as the radiologist suggests. She wants me to wait 2 months and repeat the CT scan. If progression is confirmed (platinum resistant), I will probably need to go on next line chemo right away. Not sure if I can physically or emotionally handle that....wondering if anyone else has not had at least a little bit of a break with no evidence of disease - any suggestions on how to handle it?
Thanks in advance
Hoping we have some others in the community with similar experience to share with you and help buoy your spirits. Please keep us posted on next steps for you and anything we can do to help support you through this disappointing time.
Instead of waiting, I would suggest to push the doctor to order a PET scan.
Good luck and all the best to you.
Wishing you all the best and stay in touch.
Suggest you sign up for the upcoming OCC zoom on clinical trials....it will be February 24th - 7pm EST. 90 minutes in length with some Q&A. The announcement will come out today, I believe, on OCC's FB feed and email with instructions on registration. Once the details come out I will also be posting them her on OVdialogue for those who don't follow OCC on FB or have registered for email communications.