Lynch Syndrome
HI all....
Haven't been on OVdialogue in a long time, once I was through treatment and found my in-person support group, I kind of just drifted away. I just had new information come up from my genetic testing and they have determined that I have Lynch Syndrome, which I had done some research on when first diagnosed because when I googled Uterine and Ovarian cancers showing up simultaneously, Lynch Syndrome was mentioned. When I first had my genetic testing, it came back that there was a 'variant of uncertain significance' or VUS. However, they ran more tests, sent it to the U.S. to another lab and 18 months later discovered that I do have Lynch Syndrome. I am wondering if there are others here with Lynch Syndrome and if so, what your doctors are doing to follow up. I have an appointment with my gyne-onc in December and she will be ordering a baseline CT, also I will be seeing a GI doctor for colonoscopy and endoscopy to check for colon cancer since that is what is most common with Lynch.
Haven't been on OVdialogue in a long time, once I was through treatment and found my in-person support group, I kind of just drifted away. I just had new information come up from my genetic testing and they have determined that I have Lynch Syndrome, which I had done some research on when first diagnosed because when I googled Uterine and Ovarian cancers showing up simultaneously, Lynch Syndrome was mentioned. When I first had my genetic testing, it came back that there was a 'variant of uncertain significance' or VUS. However, they ran more tests, sent it to the U.S. to another lab and 18 months later discovered that I do have Lynch Syndrome. I am wondering if there are others here with Lynch Syndrome and if so, what your doctors are doing to follow up. I have an appointment with my gyne-onc in December and she will be ordering a baseline CT, also I will be seeing a GI doctor for colonoscopy and endoscopy to check for colon cancer since that is what is most common with Lynch.
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