Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
PARP
Hi girls. I'm having a bad few days. My sister lost her son to brain cancer last year. Diagnosed with ovarian cancer at the same time as her son. Anyway, she had a recurrence one year later. She just finished chemo a month ago. Impression by doctor, chemo cleaned her up but two cells around her liver. The cells did shrink but still there. Now she is on PARP inhibitor. She is obsessing about this word "maintenance".
She sees it as her life is hanging on a thread...
Any good stories?
Does PARP kill cells? How long can PARP help? Any insight on this, please and thank you so much
She sees it as her life is hanging on a thread...
Any good stories?
Does PARP kill cells? How long can PARP help? Any insight on this, please and thank you so much
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Comments
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Hello @Scarstef - sorry to hear you are having a tough time; cancer just seems to impact everyone and everything.
I suppose it may be how the doctor has presented it to her. Does your sister have support group or interested in this online chat?There are a few PARPs out there now.
You can see some of the experiences from the chat participants if you type Olaparib into the search bar above right.0 -
Hi @Scarstef So very sorry to hear about your sister. I can't think of much worse than losing a child while also battling this disease. My heart goes out to her. And I take it you're who she leans on for support...that being the case, we are so grateful to our caregivers for being there for us..physically and emotionally. It's a huge burden to bear and so much appreciated.
As for the PARP, there are a few out there now. I can understand her obsession but maybe if she likens it to having something like diabetes. You're never cured but insulin allows you to live a longer and more fulfilling life. I am aware of women who have been on PARP for over 10 years now and still standing strong.
As @Flowergirl said, input PARP or Olaparib into the search function on this site. There have been many interesting discussions on the subject that you and your sister might find helpful. And please encourage her to reach out to us here directly. We'd love to hear from her and be there when she needs some inspiration.1