Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?

OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
Ovarian Cancer Canada is thrilled to share that we have some exciting updates on the way for OVdialogue. These enhancements are designed to strengthen our community and make your experience even better.

Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!

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Comments

  • Tinazzie
    Tinazzie
    Welcome to the chat, @Readersmaven
  • Readersmaven
    Readersmaven
    Sure...I was diagnosed last fall with Stage 3c HGSC. Had 3 rounds of chemo then surgery beginning of March, then 3 more rounds. Scan in May indicated NED, so moved on to maintenance. Fingers crossed that lynparza helps to keep a recurrence in the distance future.

    As I mentioned, my current challenge is working through the mental and emotional impact covid is having on a return to normal. 
  • cbot
    cbot
    Yes, congrats @Readersmaven on your NED status. I too feel the isolating impact of COVID. Congrats to you too @Tinazzie on your approaching final treatment-will be thinking of you and hoping it proceeds as planned
  • Fearless
    Fearless Legacy
    @Tinazzie congratulations on the end of your chemo in sight. When it's done, you ring that bell gal. It's a huge milestone in your recovery and you deserve to celebrate.  And if you happen to get delayed because of neutrophils, just grin and bare it..the end it is in sight!  Then it should be a matter of a surveillance program to ensure you get monitored...and your own plan to focus on yourself and your recovery. Just have patience and let your body tell you what it needs and what it can handle.  Recovery takes time but we're all here to help you through the bumps and the good times. 
  • Tinazzie
    Tinazzie
    @Readersmaven - that's great - congrats on being NED!  

    Thanks @fearless and @cbot for your encouragement and support!  
  • cbot
    cbot
    Thanks for the chat everyone! I'll sign off now, as they're wrapping up my IV here in the chemo suite. See u next week!
  • Readersmaven
    Readersmaven
    @Tinazzie last chemo is exciting! Absolutely ring that bell, either real or imaginary. 
  • Fearless
    Fearless Legacy
    @Readersmaven I expect we all hear you.  It's been a challenge enough coping with this disease but adding Covid restrictions seems some days like cruel and unusual punishment.  If you go to the search section (upper right of screen) and type in covid I think you'll find some interesting commentary and suggestions from previous discussions on the topic.   
  • Readersmaven
    Readersmaven
    @Fearless thx for the suggestion, I appreciate the help, as you say cruel and unusual punishment! Onward. 

    Will try to join in next week at beginning of session, now off for a zoom yoga class. Take care all.
  • Fearless
    Fearless Legacy
    @readermaven enjoy your zoom yoga and always feel free to pop in and out as is convenient.  But love to have you back with us again next week.  
  • Tinazzie
    Tinazzie
    Have a good week everyone!      
  • Tinazzie
    Tinazzie
    Signing off @Fearless.  Take care - look forward to chatting again next week.

  • Fearless
    Fearless Legacy
    Well, looks like cbot has also left us. And unless you have anything more to share today @Tinazzie I think I'll say good bye for now as well.
    Hope everyone on the chat and those looking in enjoyed the opportunity to connect real-time.  "See" you all next week.
  • CountryLiving
    CountryLiving Community Champion
    Hello ladies! Sorry to miss today’s chat. I had a transition appt at same time. Think today’s chat would have been better lol
  • Fearless
    Fearless Legacy
    Welcome all...it's Thursday already...time sure does fly. It seems like we were altogether just a couple of days ago and now a whole week has gone by. 

    Let's start by just saying hi.....and maybe what you were doing just before you signed on here. 

    Me....just finished nibbling on some freshly picked blueberries I'd bought to make a pie and now I don't have enough left for the pie......just call me Ms. Piggy today!
  • BeamBlossom
    BeamBlossom
    Hi Fearless, 
    I’m trying this from my phone today to see if it works better. Great job! Now you don’t have to bake a pie. 

    I was watching the news. 
  • Fearless
    Fearless Legacy
    Hey @BeamBlossom good to see you today. How are things?

  • Fearless
    Fearless Legacy
    Gee I didn't have the right perspective Beamblossom.  Yes, no need to make the pie now. Not sure my husband will see that as positive though LOL
  • BeamBlossom
    BeamBlossom
    I’m feeling more tired than ever unfortunately. Bloodwork is a mess, hemoglobin has improved but rest of RBCs still low and now WBC and neutrophils have tanked too. 
  • Fearless
    Fearless Legacy
    @BeamBlossom that sucks.....I'd hoped with some rest away from the chemo your blood work would improve. But that's not always the case for us without some intervention.  What does your medical team say about treating it?
  • Tinazzie
    Tinazzie
    Hello - Happy Thursday!  It doesn't look like we many on this afternoon.  
  • Fearless
    Fearless Legacy
    Hi @Tinazzie Glad to have you here with me and Beamblossom.  How are you?
  • BeamBlossom
    BeamBlossom
    My GP is at a loss not being too experienced with chemo patients. She advised to rerun the CBC in 2 wks time. 

    Hello Tinazzie
  • Fearless
    Fearless Legacy
    @BeamBlossom Have you or she made your oncologist aware; especially with the WBC and neutrophils.  You don't want immunity issues in the middle of a pandemic.  
  • BeamBlossom
    BeamBlossom
    That’s for sure! I was so looking forward to getting back to normal immunity. My GP sent a copy of the lab report to my onc. 
  • angel27
    angel27
    Hi all. Just finished doing dishes after making and eating lobster corn chowder and fresh biscuits. Yum 
  • Tinazzie
    Tinazzie
    Sorry to hear you aren't feeling that great with the fatigue, @BeamBlossom.  

    I had a disappointing week as well.  My last round of chemo scheduled for this Tuesday was cancelled due to low neutrophils.  I have to re-do my blood work tomorrow and see if it's gone up enough to do the chemo on Monday.  I have been feeling quite beat up this cycle so, not  
  • Tinazzie
    Tinazzie
    ...so not surprised, but still very disappointed.
  • BeamBlossom
    BeamBlossom
    Sorry to hear that Tinazzie, which chemo round are you on? 
  • Fearless
    Fearless Legacy
    @BeamBlossom Don't let this frustrate you.  As I know you know, low WBC and RBC's are almost a given at some point during chemo or as a post chemo side effect.  And I'll bet, but could be wrong, much of that is what has been driving much of your fatigue too.  Hopefully your oncologist will respond with some direction to your GP before the 2 week rerun.  

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