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@Strongwoman it was indeed a lovely day here too! I travelled to Kingston this afternoon for a CT scan. It’s my first scan since ending immunotherapy last month. Felt energetic enough to putter around the house this morning…laundry, vacuuming, mopping floors. Hubby had a lot to do on the farm, so I decided that I was a big girl and I would go by myself. I was in and out in short order and treated myself to some sushi before heading home. Treating every day as a gift. Definitely wondering what’s going on inside my body, and basically trying to just get on with things. That’s not something I have any control over.
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@Strongwoman yes indeed, they handed out the beautiful sunflowers at the walk. It was the first time in my life that I held one and was amazed at how large they are. Was sad cause when I took them home I realized I didn't have anything large enough to put them in some water lol. I hope you had a nummy BBQ.
@GloHo you are a force to be reckoned with. I am amazed at how you pick yourself up and move on to the next thing. You seem to be 3 steps ahead all the time and I wouldn't want to play chess with you! When I had my final interview for patient partners in research yesterday you pooped into my mind when we were speaking about trials
@JoanEG sending positivity your direction for your scan tomorrow. @HorseGirl same to you as well
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@melissa I love that they handed out sunflowers at your walk site. They did for Teal Sisters at the Burlington (ON) site as well. @Strongwoman I also learned that for the month of September in the GTA (Greater Toronto Area) that Longo's has partnered with Ovarian Cancer Canada. Money is being donated for every sunflower sold. So if you are in the GTA, drop into a Longo's and buy a sunflower for what we all know is a GREAT cause.
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@melissa congratulations on being selected to join the patient partners in research program. You will undoubtable make a difference. I look forward to hearing about your journey through the program.
@GloHo thank you for sharing information on the trial you are starting. I wish you nothing but luck and look forward to your updates. If you do experience nausea (I did through all 6 of my chemo treatments), what worked for me was Ginger Gravol and lots of ginger candies. I do however send positive vibes into the universe for no nausea for you. I have been on Senokot-S since my chemo started months ago. It worked wonders for keeping me regular. I hope you have the same positive experience with it. I'm trying to slowly wean myself off it now and return to my Metamucil etc.
On a separate note, my hubby and I are starting to consider some out of country travel. I've been exploring emergency travel insurance over the past few days, for individuals with pre-existing conditions. I saw a thread on Travel Insurance in another section of this forum. I'll post some information there to update the thread with the information I learned.
Have a nice weekend everyone.
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Hi Teal Sisters
I am in an awful place. Had Carboplatin on Monday. Have been extremely ill ever since. Weak as a kitten, hardly able to stand up, scared of falling. Phonne call from substitute onc yesterday and he impliied that giving me the full dose had been a crappy idea, and it needed to be reduced. Too late now. Anyone else had this experience?
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Yes, I also had a very rough time with carboplatin. Some days I felt so weak that I couldn’t even heat up food in the microwave! I spent a lot of time in my recliner. I actually used a walker to steady myself. Getting a shower was a struggle too! I have a tub handle that has been a lifesaver. It will take a while for this to subside, so in the meantime just rest and baby yourself. Is someone with you? When I felt like that, it was worrisome to be alone. Try to eat protein and don’t forget to take magnesium supplements. Keep us posted as to how you’re doing. Sending hugs. XXX
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@Hooodith I'm sorry you're feeling like this. I too had carboplatin but it was with taxol so I don't know which one was responsible for which side effects. I do remember feeling very very weak from round day 4 to 6 to the point if I went upstairs to make a coffee my heart was racing after going up 5 or 6 steps. I just made it a point to always keep a few water bottles next to me near the couch and drink ensure to supplement. But if you are afraid you might fall then try not to get up alone.
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Don’t have the results of yesterday’s CT scan yet, but wanted to share something positive. Last March 2023, I had an unfortunate fall off one of my horses who has always been a handful. After an ambulance ride to the hospital, I learned that my L1 was fractured. While I was healing from that, I was diagnosed with OV cancer a few months later. My goal has always been to get back on that beast, but obviously debulking surgery, chemotherapy, and immunotherapy interfered with that. I’m happy to report that I got back on her today for the first time in over a year!!! I won’t be able to ride her on the regular because she’s a lot, and my body isn’t strong enough. Not gonna lie, I was pretty nervous! But today’s short ride was a mental and physical barrier that I needed to push through. Thinking of all of you ladies today, and sending light and love. 💕
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@Hooodith I’m sorry you are feeling so awful from the carbo. I had carbo and pax together and I felt terrible through every round. For me it was nausea and nothing helped. Please rest and let those around help you as much as possible. Sending you hugs 🫂
@HorseGirl congrats on literally getting back on the horse! 🎉
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@Hooodith I am sorry to hear you are feeling so weakened from your treatment. Hoping you are not alone and have someone there with you. For risk of falling is great in your weakened state. I do hope it does not last long and subsides soon. Your Oncologist's comment was a little late to the mark for sure but going into the next one, you can be assured it will be adjusted or you will make sure it is so this does not happen again. Again, I concur with so many in their posts, baby yourself, rest and recoup is the main theme. Get better we are rooting for you. 🤗
@HorseGirl Well @JoanEG literally took the words from my mouth! Congrats for "getting back on the horse again,". That must have been fulfilling to accomplish that. So congrats. All things aside and having the scan today, it was your silver lining. How wonderful for you. 💕
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@Hooodith I too am sorry you are feeling so unwell. Per @HorseGirl 's comment, protein was my friend when I felt horrible through my infusions. I was told by a few oncologists that it was very important to get lots into your system. I hope you are able to eat, even if in small meals throughout the day. I'm sure you will speak to your oncologist for possible solutions for the next round. I would also suggest speaking to the attending nurses during your infusion. I found that the nurses had far more practical experience as they were the 'boots on the ground' folks. They made a few recommendations over the time of my treatments that really helped and that my oncologist did not initially suggest.
Additionally while I appreciate you are in a weakened state, if you are able, try to keep a journal, even if on your phone. I kept track in my Notes section of my iPhone how I was feeling each day post chemo, what helped if anything etc. It was very helpful for each subsequent infusion as I could look back and see what to 'expect' and recognize when something I was experiencing was new. It helped to keep my anxiety down quite a bit. Regardless I hope you gain more strength as the days go by.
@HorseGirl you have proven that Friday the 13th is actually a lucky day. So there cynics!!! Well done on getting back on the horse. Very impressive.
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My CT results just came back…NED!!! 😅
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That’s great news @HorseGirl !! 🩵🎉
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My wonderful Teal sisters! Thank you so much for the advice and the great verbal hugs you gave me. One of my problems was not being able to stand up from the toilet. So scary. Now I have a commode thingie. I def have more confidence. I am prettty mad that I have to go through this. But I can feel my energy very slowly creeping back. @Alwayslearning My husband keeps that journal for me. It has been helpful but this time everything seems different…I am never alone, by the way, he is always at hand. We have a baby monitor so even in the night he is a hop skip and a jump away from me. He is amazing. My two cats hardly ever leave my side as well. They seem to do shifts of sleeping on the little bed on my bed that is just for them. I am very lucky
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That is excellent news @HorseGirl congratulations 💙
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That is awesome news @HorseGirl 🎉💗💕
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@Hooodith how are you feeling today? I've been thinking about you. I hope it's been a more positive day.
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@HorseGirl fantastic news!!!!!
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@Hooodith I'm glad that you have the toilet support. I used one when I had my knee replaced, and I became very attached to it. In fact, I’m kind of missing it now by talking about it. LOL Glad that you’re resting up and managing. Do you have an electric blanket? Coming into the cooler weather, I would highly recommend it. I found mine to be very soothing during chemotherapy treatments. Sometimes I would turn it on in the daytime and just lie on the bed with the heat on my back.
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@Hooodith I do recall you stating previously how involved your hubby was in your journey. You are very fortunate to have him. I, personally, don't think it is the norm and know it is not in my case. But…..I do know much more medically compared to him so for us, it's a no brainer that I take over that part of it. Makes it easier and then I can break it down in terms he can understand from there. Means he doesn't have to go to the appts either….yay for him! LOL ;)
I had the seat commode when I came home from my surgery and I have no idea what I would have done without it. I have saved it and will use it again if needed. It was a godsend that is for sure! Whatever works for you and makes it easier and safer for you, you go girl! The electric blanket was helpful too plus I think your cats may like or enjoy that as well. They may be extra cuddly.
Wishing you the best as you gain strength this week and recover. 💕
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