Hi everyone. I’m just looking for some support. I had an allergic skin reaction 9 days after my first chemo. It subsided with cortisone and reactine and now I’m on reactine long term which makes me drowsy and nauseous. I’m nervous about having an allergic reaction at my second chemo which is on Thursday. Also if I can’t tolerate standard of care chemo I will be disqualified from a clinical trial that I’m on. All this is triggering some anxiety and I could use some encouragement, advice, support.
Sometimes, your treatment may be adjusted and given more slowly (the IV rate) or you may be give a drug to prevent or reduce the reaction, and it just depends on how severe and your situation, so ask lots of questions.
Not sure which chemo drugs you are being treated with... on a personal note, my whole head ended up with hive / rash like bumps after one of my treatments - yes, it was a delayed reaction over a week post chemo and slowly, it went away... it only happened at the first cycles. Wishing you some comfort and know they will look after you.
on needs to approve this switch. It feels pretty discouraging - I was psyched for chemo cycle 2. Has anyone else had a paclitaxel allergy? Can you share how it was dealt with? Thanks 🙏
tagging some teal sisters who I’ve been in contact with but no pressure to reply @Bluebird @jiselle16 @kattie666 @love2run @LoDM @cbot @MarilynOCC
be worked out soon. It definitely seems that paclitaxel is no longer an option. I didn’t react to it in chemo 1, but I did develop
a delayed skin reaction 9 days later. It’s pretty frustrating and scary.
I'm so sorry to hear about chemo #2. That I can relate to as I had similar experience with Paclitaxel.
So hang in. Draw on your inner resilience. And know we're all rooting for you.
The third chemo beginning of March I was scared as to what would happen next and so my oncologist cut back my taxel by 20%, gave me still more benedryl and steroids and did a slow infusion. They started off with a 25% taxel infusion, then after 30 minutes of no reaction they increased it to 50% and then half hour later put me up to full taxel infusion. Of the 3 chemo treatments it was the best one. I made it through that chemo! I was given a great nurse who understood why I was so anxious to be there and watched over me. Kept me distracted and had me laughing. The nurses do know so much. I too travel to PMH where my trip takes 2 hours one way. I am done with all my chemo now. Did not think at the time that I would be able to make it. My CA125 is normal now and there is no evidence of disease. I empathize with you as you go through Chemo and treatments. It is tough but I know you are tougher! We are here to support you in any way. Hope my story will encourage you.