New to Site - IP Port Advice?

Newly diagnosed in spring of this year.  Surgery June 25 with complete hysterectomy.  Cancer resided in right fallopian tube and right ovary only so pathology confirmed a Stage II.  Heading to first chemo July 20 - so only 3 days from now. Anxious for sure.  Early 60's and dr quite positive for my long term prognosis.  Offering my the ability for an IP port to wash the abdomen for round 2-6.  Has only used IP port on line?  Want to hear more if so

Comments

  • I had the IP port treatment at Princess Margaret hospital.  It made for a long day of chemo but best to do whatever you can to conquer this beast. Good luck. Hugs and prayers 
  • Angel 27 Thank you for answering.  I am being reminded each person's journey with this will be unique but I read the IP choice causes more significant side effects than IV.  What is your point of view?  Could you still function post chemo or was it debilitating?  Not knowing how long ago you went through this, did IP port choice provide prognosis your dr suggested?
  • I finished chemo 3 years ago this past March  surgery was in sept 2016. Just before my 58th birthday  I was pretty much out of commission during my chemo. I didn’t work and would not have been able to. I did have quite a bit of nausea  and was hospitalized for 2 infections  then they gave me neopogen shots which helped  I honestly don’t remember being given a choice really. The IP was highly recommended as being my best chance. And at that point I still didn’t know about the high rate of recurrence. I had 3c high grade serous I think. No problems so far knock on wood  
  • It has been offered to me as stage 2 since is not typically offered as over and above to iv and dr said  ultimately my choice. I am intending to still work as distraction as much as anything but have read the port causes some potential over and above issues.  I am very nervous for Monday and hope I can toughen up to get through this. No Choice. I so appreciate your feedback on a Saturday. 
  • no problem feel free to contact me anytime or for any other questions.  My chemo brain (still use that excuse lol) will do it’s best to answer. 
  • Great you have been able to connect and share @angel27 and @Billie
    Sending our support to you for tomorrow :)
  • Thank you. On my way
  • :) hugs and prayers 
  • Hope things went ok 
  • Thanks for checking in. Port being inserted this Friday. Iv Chemo 1 good and bad so far.  Port will allow therapy to really target and eradicate 
  • Wonderful. And remember I’m here to help if you need it!  Will you be doing hydration by ov after each treatment for a few days? 
  • sorry sorry to not have checked earlier. Hope port insertion went okay and chemo is going ok
  • Too long a saga to describe. Just came back today from having first one removed and then dr nicked my bowel. Now on antibiotics. They want me back next week. Not sure I want to pursue. Hope no infection comes of this or there will be trouble
  • Oh my. I am so sorry. You have been thru a lot. Fingers crossed things go better sending good thoughts and hugs 
  • Do keep a close watch on your temperature. 
  • For sure. On two types of antibiotics. Cant believe I have to about this
  • Fingers crossed is nothing. 
  • BillieBillie
    edited October 29
    Circling back after many weeks. Last iv treatment of 6 this coming Monday. 








  • @Billie That's great news.  #6 is truly a milestone and hoping you ring that bell loud and proud.  Here's hoping for a good result from all of the treatment.  Please continue to circle back.   <3
  • Dr was quick to point out recurrence rate so could have done with more positive post treatment surveillance message.  See lots of folks on this site where recurrence not happened.  Does not have to be a given.
  • @Billie I guess all I can say is each doctor has their own bedside manner. Some brutally honest about the worst, while they hope for the best. Others leave you completely oblivious to anything you could expect beyond a total cure.  A happy medium would be preferable. I can tell you that I'm High Grade Serious 3C.  Finished first-line treatment in 2017 and recurrence never occurred to me until I was asked to join a focus group about Fear of Recurrence. That was about 6 months after I'd finished treatment and until I went the focus group it never occurred to me I might not be totally cured.  That was the day I decided to do all my own research, learn as much as I could, and make sure I had no new surprises waiting around the corner.  And that also allowed me to sense the actual recurrence I had very very early on.  It's been almost four years ago and I"m still here and kicking.  I know women on this site and otherwise you are survivors of 20 and 30 years. I know women who have had recurrence and then go in to total remission for years and years.  And yes, I know the other too. But fewer and fewer of those now than ever before with so much more research and the introduction of newer and newer treatments.  So yes, recurrence does not have to be a given and if it does occur it also doesn't need to be the end of the world.  Stay positive and optimistic but every vigilante. <3
  • hi Billie. Glad to hear you are almost done chemo. I too did not know about high rate of recurrence til I was done chemo   I didn’t ask earlier or check cause chemo was all I could deal with. Fearless is right best to know so you can be aware. I am 4 years past surgery and in February 2021 4 years past chemo. And knock on wood all well so far. At least you know you did everything you could to battle the beast. Ring that bell!!  Take care 🌻🙏🏻🥰
  • Thanks angel27. I rang the bell with high hopes I will not  see inside of a chemo treatment area again. Feeling a bit depleted this weekend as per normal but front line treatment is done. Will get a completion ct in about 3 weeks then do a brca test per dr. Time to get strength back and get on with my life
  • Congratulations @Billie.  How wonderful to have completed your chemo.  Let's hope for a positive scan and that this begins nothing more than a successful journey to recovery.  We're all rooting for you.   <3
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