I am hoping this crowd can help me.
I had a radical hysterectomy on Aug 23, 2019 after I was diagnosed with atypical hyperplasia. Didn't sound like cancer. I had the surgery and excelled at my recovery. There was hardly any pain, and they took everything, except my ovaries which looked apparently good at the time. I was feeling so good that I even asked my doc to allow me to work part time, just to get back to normalcy!
Then my whole world changed yesterday... again.
I was napping and woke up to my cell ringing. When I answered it, it was the receptionist from the Oncology department making an appointment for me. What!!!! No one told me that I was being referred and no one told me to expect such a call! I thought since I had my hysterectomy and everything went "great", that I was cancer free. I was sadly mistaken. Of course the office can not give me any information. I called my surgeon and family doctor's office, but of course they were not available. This began the most agonizing 16 hour waiting period! What was going on.
Yesterday morning I got a call from my gynecologist, apologizing that she was not the first person to inform me about my cancer diagnosis and referral to the cancer clinic. In my opinion, this was a grave oversight! My gynecologist proceeded to tell me I did have endometrial cancer and it was Stage 1A. However, they also found cancer in my the lymphotic membrane - LVSI what I have come to learn is lymphovascular space invasion. This sounds really bad! I believe I zoned out a little in this conversation... completely in shock at this information.
I, of course, traveled down the rabbit hole of Dr. Google immediately (which I know you shouldn't do). But in the absence of information, you seek to fill in your own blanks. The more I searched the worse it got. I finally had to close my browser and cry... a lot.
Today, I mustered the courage to review some of the notes I had written from the conversation with my gynecologist; I could make out words like "radiation", "chemotherapy", "second opinion" and "Dr. McGee." I have to wait 2 weeks before my appointment at the Cancer clinic and I am hoping for some insight. What has your experience been with radiation and / or chemo and what should I expect. Are you a patient of Dr. McGee in London and what is he like?
Searching for any kind of information as I feel like I am living in an alternate universe!
Thank you for listening.