Testimonial request

battleoflife12018

Hello Sisters
I was diagnosed in Jan 2018
Debulking done March 3018
 Chemo (6 rounds) completed August 2018
Ileostomy closed Nov 2018
Feeling great now and check ups have been good. 
I have been asked to share my story at an upcoming event to raise awareness in my community. I am requesting any words of wisdom, hope,sisterhood, and quotes that I can share with others at this event later this month
Yours in wellness and sisterhood
Sharon

Flowergirl

Great to hear you are doing well Sharon, @battleoflife12018.
Glad you are able to share with others about this disease. Hoping some participants will post some current messages.
The encouragement and support category may provide some insight as well.

battleoflife12018

Thanks Flowergirl!
I was looking for info on this site today. Will look again for the encouragement and support category.
Cheers

christineyang

@battleoflife12018
I am so encouraged to hear your story, my mother just completed her debulking surgery 2 days ago with the installation of what they expect to be a temporary Ileostomy.  

6 sessions of chemo are to follow before hopefully reversal of Ileostomy.

Would love any advice regarding the recovery process - what you would recommend for the best healing possible . We have an idea on food , but some tips based on your experience would be great. We feel a bit new to all of this and each step feels daunting but I am trying to stay strong to support my mum and dad as they go through this . 

battleoflife12018

Hello Christine 
I am so pleased that my story has brought you and your family comfort. Your Mom’s experience is so similar. I am happy to share my experiences with you. I might be easier to chat on a messenger video
Are you on Facebook?
Sharon

battleoflife12018

Here are some Diet suggestions. 

To thicken ostomy output. 

Avoid caffeine.
tapioca, rice, and potato chips help thicken output. 

I lost a lot of weight with my ostomy and chemo, which led to stoma fitting issues, I may have some suggestions for that, hopefully that will not be an issue for your Mom. 

Where is your Mom accessing treatment and surgery?
I just got home from Yoga, and curled yesterday afternoon… there is hope
Sharon

christineyang

Thanks so much for sharing your advice, already such valuable information and things that I would never have thought of.

I am indeed on Facebook. You can search Christine Yang or try this link : https://www.Facebook.com/Christine.yang.359

Thank you so much for your time and message. It’s really felt and much appreciated