Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Testimonial request
Hello Sisters
I was diagnosed in Jan 2018
Debulking done March 3018
Chemo (6 rounds) completed August 2018
Ileostomy closed Nov 2018
Feeling great now and check ups have been good.
I have been asked to share my story at an upcoming event to raise awareness in my community. I am requesting any words of wisdom, hope,sisterhood, and quotes that I can share with others at this event later this month
Yours in wellness and sisterhood
Sharon
I was diagnosed in Jan 2018
Debulking done March 3018
Chemo (6 rounds) completed August 2018
Ileostomy closed Nov 2018
Feeling great now and check ups have been good.
I have been asked to share my story at an upcoming event to raise awareness in my community. I am requesting any words of wisdom, hope,sisterhood, and quotes that I can share with others at this event later this month
Yours in wellness and sisterhood
Sharon
2
Comments
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Great to hear you are doing well Sharon, @battleoflife12018.
Glad you are able to share with others about this disease. Hoping some participants will post some current messages.
The encouragement and support category may provide some insight as well.
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Thanks Flowergirl!
I was looking for info on this site today. Will look again for the encouragement and support category.
Cheers0 -
@battleoflife12018
I am so encouraged to hear your story, my mother just completed her debulking surgery 2 days ago with the installation of what they expect to be a temporary Ileostomy.6 sessions of chemo are to follow before hopefully reversal of Ileostomy.
Would love any advice regarding the recovery process - what you would recommend for the best healing possible
. We have an idea on food , but some tips based on your experience would be great. We feel a bit new to all of this and each step feels daunting but I am trying to stay strong to support my mum and dad as they go through this . 0 -
Hello Christine
I am so pleased that my story has brought you and your family comfort. Your Mom’s experience is so similar. I am happy to share my experiences with you. I might be easier to chat on a messenger video
Are you on Facebook?
Sharon0 -
Here are some Diet suggestions.To thicken ostomy output.Avoid caffeine.
tapioca, rice, and potato chips help thicken output.I lost a lot of weight with my ostomy and chemo, which led to stoma fitting issues, I may have some suggestions for that, hopefully that will not be an issue for your Mom.Where is your Mom accessing treatment and surgery?
I just got home from Yoga, and curled yesterday afternoon… there is hope
Sharon0 -
Thanks so much for sharing your advice, already such valuable information and things that I would never have thought of.
I am indeed on Facebook. You can search Christine Yang or try this link : https://www.Facebook.com/Christine.yang.359
Thank you so much for your time and message. It’s really felt and much appreciated0
