Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
The new OVdialogue experience is only days away! Here’s what the updated platform will offer you as a valued member of our peer-to-peer community:
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Introduction
ValP from Halifax, NS. Diagnosed with Stage 3C High Grade Serous Ovarian Cancer in Jan/2018. Surgery to remove uterus, tubes, etc. as well as most of the omentum. Had port inserted in the abdominal cavity. Received 5/6 months of chemo treatments. Followed by approx 5 months of remission. The cancer came back and it is inoperable & incurable but manageable. Have been receiving chemo treatments since Oct/2018. The drugs I'm not receiving are Avastin & Pacalataxal (pls excuse spelling). I am now due for a new CT Scan & then a Dr. visit at the NS Cancer Clinic. The NS Cancer Clinic has been outstanding. The care that I have received is amazing.
I'm unhappy with the late diagnosis & with having read that 75% of Ovarian patients are not diagnosed until Stage 3 or 4 is unbearable.........why is this so?
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Comments
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Hello @ValP - a welcome to the site to you. Trying to clarify the above- are you still on those drugs or in chemo?
Good to hear you are well taken care of.
Yes, here is hoping research can create an effective screen tool!0 -
I am scheduled for one more chemo followed by a CT Scan. After the scan I see the gyne oncologist to determine next steps.0