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From your message, it seems your diagnosis was many years ago, your surgery/treatment more recently...other than the support stockings, is your health care team able to provide other support or treatment for the lymphedema?
Sorry, I am not sure of your current status, are you still in treatment? Thank you again for sharing.
problem I have.. in my whole body
Reaching out in this community is also a good way to begin to feel less isolated. There may be other discussions and comments that you can relate to like How can friends and family help, books and resources, Using writing, Teal Tuesdays - a live online discussion 1x week, and even the anxiety discussion where people have posted lots of pictures of their pets.
Have you received a copy of By Your Side, a guide for women diagnosed with ovarian cancer.? You can order on our website at: http://ovariancanada.org/living-with-ovarian-cancer/support-resources
You may also want to see if there are any face to face support groups in your area. Here is a link to find out:
What kind of support do you have around you from family and friends? Do you find it difficult to reach out?
One question...Did anyone here who was also post menopausal, experience a renewal of symptoms after surgery? I had years of mostly hormonal migraines over menopause, and find I'm having them again, presumably from losing that last little bit of estrogen. My gyne oncologist seemed to think this was possible. If anyone else experienced this, how long did it last?
How has this experienced impacted you?
How do you cope with these ongoing issues? Do you have any tips that you could share with other women who might be dealing with similar things? You might want to check out other discussions to see what other women have shared too.
Did you receive a copy of our guide, By Your Side? I can send it out to you or you can order online here:
How have things been with your family and friends with all the news about your diagnosis, treatment and now the clinical trial? Do you have a good source of support? Of course, you will find support here too - so glad to have you a part of the community.
@Marilyn, yeah it was all quite shocking. I do have "by your side" but I understand there's another one too that I'd like to get...more aimed at recurrences. Friends have been good, family not so much but that's a long story. Hope to soak some knowledge and kinship from this group as we all deal with this.
@red1976 thanks, I'm pretty freaked out about my CT. Will be in 2 days but prob won't get results till next week.Fingers crossed and trying to stay positive.
i appreciate having this group.
i did have genetic testing and I tested negative so I was not a candidate for clinical trials or new meds such as Avistin. When my palliative doctor took over my case I had to sign off as a patient of my gp.
Its been a long Road, I’ve learned so much, met so many amazing women and said good bye to too many. I have a great support system with an incredible husband, loving parents and supportive friends. I’ve continued to work throughout the entire 7 years as it was a great distraction. Havent ever been part of a support group but feel the need for some contact as the worry about upcoming appointments can be difficult to overcome.
I look forward to connecting with you all!