Hi everyone my name is Eileen. I am so glad i found this site. I live in Kelowna BC. Have 4 grown p children. Have a little furry shih tzu and cat to keep me sane. My late husband died, be 3 and half yrs ago due to lung cancer that spread to his liver before finding out. I was diagnosed with stage 3c ovarian cancer on Valentine's day, of all days to get the bad news Feb 14 2021. The cancer had spread to my perirectum and omentum.Been feeling not quite well for awhile. Been having bloating etc. back and groin pain. My dr thought it was groin pain from pulled muscle. Long story their but I am with a new dr now. Woke to feeling abdomanal pressure and noticed it hurt below just pressing. Hospital kept me few days to run tests to make sure it didnt spread elsewhere. But funny thing is, I was in hospital for groin pain in Dec 2020 and they did ct then and the radioologist said i had a 13mm cyst on my ovary back then. I asked the dr when I found out in Feb 2021 that I had a 13mm cyst back then. Their answer was oh we didn't know what we were looking for. You can imagine what went through my mind then. But I started chemo in March 2021, was scheduled for debulking surgery in beginning of July 2021 but with this covid and all precaution I was taking, I came down with it and my surgery had to be delayed. Needless say I got my debulking surgery, full hysterectomy and removal of my omentum. Then had 3 sessions of chemo afterwards. I had a few delays in my chemo due to my blood levels, they had to lower my carboplatin on my 7th chemo by 10 percent but still ca125 levels went own by my 8th chemo which was Nov 2021 I had another delay when they did my ca125 levels at 4 weeks it was down to 26. But 1 week later which would now be 5 weeks after last chemo they retested and my ca125 went up to 40. Omg I spoke to my oncologist she still got me in to do my 8th session of last chemo but lowered the abraxan this time. So three weeks later just Dec 2021 I had my contrast ct to only show that a few sm nodules redeveloped in my periotic gutter measuring 6mm or less. Long story short, my oncologist has recommended that I start Zejula. She recommended a break from chemo as i asked if should do more she said the goal is to stop them from growing anymore and keep them small. I don't have the gene mutation at all but my oncologist said newer studies had actually proven good outcomes for people who doesn't possess this gene. I did research the world out of maintance therapy drugs and had all sorts of questions for my oncologist when I saw her. One of them was Zejula. Needless to say i am scared at all the side effects i have read. Not too much reviews from others on this drug. Biggest fear I have is I start it and it doesnt work. My oncologist recoomends i start taking vitamin d and calcium daily and she also said for me to start retaking my nausua meds 3 times day, half hr before each meal. When i start taking them.I was given those for my chemo. I actually hardly used them i did extremely well n chemo. Have to go do my updated blood work first though.QuestionHas anyone here been on Zejula or is currently taking Zejula who doesnt have the brca 1 and 2 mutation and are on would love your feedback. How about side effects for anyone using them and how your coping. Any feedback would greatly be appreciated. Thanks for letting me share my story.
I am wondering how people discover a recurrence. Blood work, ct, luck? I worry about missing it. Thanks
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