Community Connection: Ovarian Cancer Canada is looking for volunteers! Could you help?
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
Ovarian Cancer Canada is thrilled to share that we have some exciting updates on the way for OVdialogue. These enhancements are designed to strengthen our community and make your experience even better.
Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!
Stay tuned for more details, and feel free to share your thoughts below. Let’s make this community even stronger!
Let's get started! Come and introduce yourself
Comments
-
Thanks @CountryLiving! My first session went smoothly enough. I’m at day 4 afterwards now and have felt deep fatigue for the past 2 days. I can barely keep my head upright and my brain feels like jello. Did you experience anything like this and do you have suggestions on how to manage it? Thanks 😊0
-
I know it sounds counter intuitive but you need to move around to help fight the fatigue. Baby steps but even a five minute walk will help2
-
@nadia I say listen to your body. Somedays you may lie all day on the couch and other days you may feel like going for a little walk. Dont overdo it because you may pay for it the next day. Be in contact with your team and they may suggest other ideas. All very common side effects but they too will get better. Hang in there!1
-
@love2run how did your chemo go? Hang in there! So many ladies with stories of inspiration and hope. Keep up the positive mind and as you say keep telling that cancer to take a hike. Thinking of you and hoping it went well.1
-
Chemo was ok, I had three good days before the side effects hit, today was rough, tomorrow will be better. I’ve told the chemo to send the cancer packing and keep it away. It’s getting old, lol2
-
@nadiaC - I had extreme fatigue at times as well. All of a sudden I just had to lie down - didn't always sleep, but just had to lay back, close my eyes and rest. Your body will tell you what it needs - don't try to second guess it..Your system is doing its best to fight back and it needs lots of sleep.
2 -
Hang in there @kattie666 - Positive thoughts coming your way!
1 -
Hi Everyone
Although I have been connected to this site for a time now, I haven't really made to to many comments until today!
My story is I got sick in September 2019, with pneumonia and was hospitalized for 10 days at which time my stay there, my right lung collapsed and there was 6 litres of fluid drained from my right lung. Having had an amazing Doctor, decided to test the fluid for all kinds of things that doctors do, and it was there that I was first diagnosed with what they said was Cancer growths but very early stages. After release, there were a series of further tests to be done and then it came back that I was diagnosed with Ovarian Cancer - Quite a Shock I can tell you.
Recommendations given and come two months later I started Chemo. It came as a shock at the first appointment with my oncologist as he wanted to start Chemo the next day, but both my husband and I went into shock and had to talk, so they were good enough to put it off a week. At this time they also did the Genetics Blood Test, having cancer be in the family!
My mother passed away from breast cancer when I was 12 so there is no knowing if the gen mutated with her or my grandmother on my fathers side (who also had breast cancer and passed away) many years ago. The genetics blood results came back positive and so now my sister will have the test.
During the many appointments there was this constant discussion of Ovarian Cancer and a growth on the peritoneum, which finally I was told is where the cancer growth is and not on the Ovaries It is not operable, because of the location and size, which is why Chemo was mentioned and happy to say this has shrink the growth. So positive results there. And now on Lynparza, and blood thinners due to the lung collapse.
It is amazing what the medical system can now find out and what can be done.
To all the AMAZING women out there, thanks for 'listening' and I hope that we can all Stay Strong for Each Other.
Apologies if this 'chat'seems long....
5 -
Hello Everyone
I've been fighting and Winning ovarian cancer for 9 yrs and thought that I would introduce myself. I would love to chat or get to know anyone that wants to share. This site is so inspiring beacause while we all 'get it' we have so many different issues affecting us at so many different times. Thanks5 -
Welcome @KiwiChick, the chat is never too long..that's what makes this site wonderful..share as much or as little as you want...glad go hear it's going well for you...love the support and love the ribbon2
-
Welcome @devanator..glad you've introduced yourself..I think your inspiring for fighting and winning for 9 years...and love for you to share your stories..1
-
@KiwiChick - thanks for sharing your story - speaking as someone who frequently gets a case of verbal diarrhea - don't worry about it! OVDialogue is the place to share, support or vent, depending on your situation at the time. Welcome! We are all keeping positive thoughts for you and your family.
1 -
@devanator - Welcome and glad to have you as a part of our Community and OV Diaglogue. Your story is inspiring and gives us all hope for a healthy future. Thanks!
0 -
We have had several new members recently join the chat site - again, a warm welcome to you all.
You can post your story here if you wish and/or on your bio / profile page.
If you would like to learn about the experiences of others, you can also look back thru this topic - note at the top of this category we are at 17 pages - you will learn about the stories of others and their experiences from when the chat was first started!1 -
Good evening and welcome to our new chat participants.. This is the discussion are where you can tell your story and you can also post it on your profile / bio page.0
-
All I want to do is leave the group and stop receiving emails. How do I do that?0
-
@KiwiChick thank you for sharing your story and welcome to the group. I too started my journey this past fall. I had major surgery followed with chemo. I am done my treatments and have had one follow up appt and all looks good. Yes it is a journey no one wants but because of cancer I have met so many wonderful inspring and empowering women. Stay strong!1
-
Hello @Readersmaven - Welcome to the chat site and thank you for sharing your experience.
You are welcome to post your story here in this discussion and/or on your profile page.
Although the chat site is available 24/7, there are a few times when we try to "live chat" and connect at the same time.
You are welcome to join us for Teal Tuesdays Evening @7:00 PM CST or Teal Thursdays Daytime chat @1:00 EST0 -
Hi there, I just saw this site on the news today and decided to join. It's been since January that I finished my last treatment, I was diagnosed with advanced stage 3c ovarian cancer. I think being able to talk to others will really help in dealing with it. I am positive and really want to help support others as well
2
