Looking for any Clear Cell Carcinoma Sisters! (Ontario)

I'm 48 and was just diagnosed with Stage 2 OCCC a few days ago. Feeling VERY angry and incredibly overwhelmed. I'm having a hard time accepting that I am now part of the Cancer Industry. Apparently the stats aren't that great for this cancer type.
Just wondering if anyone has any tips on how to cope, emotionally. Thanks.


  • Hello @SpectacularKaos... welcome to the chat site and sorry to hear about your recent diagnosis.
    How are you doing today? There is a lot of support here on the site as well as many topics and coping strategies we hope will assist you. I'll also private message you.
  • I have OCCC - Stage 3 and know exactly how you feel.  I was diagnosed in early February. It is overwhelming at times but I just focus on the good days when I can get out and do normal activities like shopping, visiting with friends, and walking as well as doing hobbies.  I try to live in the moment and take it day by day.  This is easier to do in weeks two and three once the chemo side effects wear off.  
  • kastoyleskastoyles
    edited April 2019
    @SpectacularKaos, I was diagnosed with Stage 1C Clear Cell in January 2016. The tumour was successfully removed, but they discovered a breach and it was possible cells had leaked to my abdomen. The recommended course of treatment was 6 rounds of chemo. I was shocked to find I had cancer in the first place - then to need chemo? My family doctor said that I needed to be as aggressive as possible with this cancer.  I thought of my mother who died from breast cancer in 1975. If she had the options available today, she would have done whatever she could. So, I had chemo.
    How do you cope? It's different for everybody - but there will be sleepless nights, tears, anger and frustration. You will get through it. This forum is here to help. Talk to friends, join a support group, connect with others who have gone through the same thing. Try journalling, meditation or relaxation techniques - they all helped me cope, but it was a long time before I personally made peace with the diagnosis and treatment.
  • Hi @SpectacularKaos! I'm very sorry to hear about your diagnosis. I too was diagnosed with Stage 1C clear cell carcinoma in June 2016. I live in Ontario. I had a full hysterectomy at age 31 and then did 6 rounds of chemo as a precaution. Clear cell is a more rarer and aggressive type of cancer - so I was very scared - but I have been in remission since 2017. I too was very angry and overwhelmed when I was diagnosed...it felt like a whirlwind. I still am dealing with the residual anger (why me?) but in many ways cancer has changed my life for the better. I know it sounds a bit hokey, but I no longer take things for granted and try to live life to the fullest. There is a book called "Picking Up the Pieces" and it was instrumental in helping me cope once treatment was finished. If you have any questions or just need to talk or vent - feel free to post here. We got your back!
  • Hi everyone.... I have been newly diagnosed with Stage 1a CCC.  Information I quite didn't expect to receive when I went to investigate a mass growing within me. I followed through with a radical hysterectomy and mass removal.  Pathology confirmed the early stage CCC which was contained to my left ovary.  No treatment required (and praying that I made the right choice).  I am happy to meet everyone and read your stories of strength, hope and survival.  We got this!!  
  • Hello @LISA
  • WEclome to the chat site. We hope you are doing well and find much support here online.
    I have a couple ladies in my in person support group diagnosed and treated for/with Clear Cell... I'll see if I can gain some insight to share or if they are able to join this site
  • I realize this discussion is from the spring of 2019, but I feel I should add my name, as it were. @LISA , @jiselle16 , @kastoyles , @SpectacularKaos, @Maggie_Mae_2019
      My hysterectomy was in mid-November, 2016.  The larger cyst was a 17cm oval. I got the pathology 4 weeks later; stage 2 ovarian cancer, with 10% of the cells being clear cell.   The other cells were adenocarcinoma. I had chemo and radiation.  The treatments weren't too bad actually, and now I'm No Evidence of Disease.  Anyway, a year or so after the pathology report, they changed the staging 'rules' so what I had was stage 1C. 
    SpectacularKaos, did anyone say what percentage of clear cell you had? In any case, my doctors said as I had clear cell, I needed chemo and radiation, so that's what I had. 
  • kastoyleskastoyles
    edited February 20
    Hi @Elsie13 glad that you found us and I found your comments curious. I had not heard anything about staging rules.
    My oncologist said I had clear cell, but don't recall a percentage. My surgery was in Jan 2016, beginning chemo in January and finishing in July. I was diagnosed as 1C - my tumour breached and there was a possibility some cells leaked into my abdomen - that was the reason for chemo.
  • @kastoyles, I tried a computer search, cancer staging rules in Canada, but I couldn't find anything.  Then I found: https://www.sgo.org/clinical-practice/guidelines/new-figo-ovarian-cancer-staging-guidelines/   I live in Montreal, so maybe the health care here took a few years to catch up with the new system???
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