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OVdialogue – consider joining our team in the role of Community Champion. Over a few hours each week, you would be part of a team that helps connect people, support conversations and are thought leaders for OVdialogue. This is your opportunity to give back to those who have/continue to support you through the tough times, share your unique experiences, and help celebrate successes. For more details of what this entails, please reach out to @Mfallis (mfallis@ovariancanada.org).
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We look forward to seeing you in the refreshed platform!
• A personalized experience, just for you: your member homepage displays the content you engage with most, including a resource library where you can engage in discussions directly related to the content.
• Have conversations in real time: You can respond to notifications and personal messages from people in your community directly from your email inbox; plus it’s easier than ever to return to the platform.
• Stay up to date on the latest events: upcoming activities will be listed in an events calendar right here in the platform
During this time of transition, private messaging within the platform will be unavailable beginning January 22, and posting will be unavailable beginning January 27.
We look forward to seeing you in the refreshed platform!
Low grade serous and hormone therapy
Hello,
My oncologyst wants to give me hormone therapy. She saw some funny things on my last PET-Scan...
I see her tomorrow and we'll also have the results for the CA-125.
Is there anyone diagnosed with a low grade serous ovarian cancer and put on hormone therapy? Which one do you use?
PS: I ended the carbo/taxol chemo 6 months ago.
Thanks a lot for your responses!
Cecile
My oncologyst wants to give me hormone therapy. She saw some funny things on my last PET-Scan...
I see her tomorrow and we'll also have the results for the CA-125.
Is there anyone diagnosed with a low grade serous ovarian cancer and put on hormone therapy? Which one do you use?
PS: I ended the carbo/taxol chemo 6 months ago.
Thanks a lot for your responses!
Cecile
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Comments
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Do you mean anti hormone therapy?
i have low grade too. I tried going on letrozole. The hot flashes I could handle but I found it gave me sore/stiff joints- in every joint.
so I’m taking a break.
If you are referring to Estrogen blockers, have you had any success with any of the other ones?0 -
Hi Ula,
I'm taking letrozole too. I've been on it for 7 months now and I don't have any side effects. But that's the only estrogen blocker I've tried.1 -
Hi I’ve been on Letrazole for recurrent Low Grade Serous since November 2016. My disease is inoperable. My initial response was a 25% reduction in tumour size. And my disease has remained stable since then - for 3 years. Yes I hate the side effects. Side effects have lessened very gradually over time, they are still there but I suppose I’ve adapted to living with them. I’d like to try going off Letrazole and see what happens but my Gyne oncologist recently informed me that if I do, there’s a risk that my disease will become resistant to the drug. I’m not willing to take that chance.0
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Hi there, I'm also low grade and need help. I had debulking surgery in February and waiting for CT scan in August and possibly starting Letrozole. Why are you inoperable?0
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Was on Letrozole for just over 3.5 years but developed an immunity to it. Have just been put on Tamoxifen. Has anyone had any experience with this drug?1
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I know this is an old thread but curious if any of you are still active on this site and where you are with your treatments with LGSC
So if @Chezilme @Ula @Cid1 @Monica_M @resilient1 Are out there.....want to tell us how you are doing?
I and @Sylviequebecbc have LGSC and we would be interested in hearing where you are at in your journeys. I am hoping someone will receive this and reach out.
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