Hi:
My name is Shannon. I’m 40 years old. I’ve just been given the devastating news that I have high grade serous Fallopian tube / ovarian cancer.
Im waiting for an appointment with a oncologist to stage this, and put a treatment plan in place.
Im heading to the London cancer center in London, Ontario. I’d love to connect with any other people that have been treated there. My doctor will be Dr. Prefontaine.
Devastated to be part of the “club”, but very happy to have found this site.
Shannon
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If you were not given a copy of By Your Side, it is an excellent resource and you can order it here free:
https://ovariancanada.org/living-with-ovarian-cancer/support-resources
Will private message you as well.
Thank you for your words of support. I actually met with my oncologist in London yesterday, and he’s hopefully optimistic that the two tumors contained in my fallopian tube have not spread yet. We have to do a CAT scan, and a debulking surgery to be sure, but because my initial hysterectomy surgery showed no evidence of cancer in my one ovary and uterus, he said theres a great chance it hasn’t spread beyond the pelvic region. I will have to do a round of chemotherapy to get any rogue cells that might be floating around in there, but I took that is great news! Now I just have to get past The scan and next surgery, and I might have a shot at beating this! I feel like I can breathe for the first time in 2 weeks.
I live in London, ON and also have been diagnosed with HGOC, not sure what stage as I’m doing chemo first but I know it’s advanced as it has already spread. I just met your doctor this week as my oncologist was on holidays and he covered for her. I think they all seem very caring and knowledgeable. So far, I’ve had 2 chemo treatments. I just finished my second on Wednesday. If you have any questions, please ask. I’m very new to this, so I may not be too much help though...lol
That’s great news that your cancer may be contained. I do live in London so I’m doing my treatments at the Cancer Clinic there. I’m seeing Dr. Bertrand there, she’s been awesome.It’s great that they have satellite sites so that you don’t have to travel. I’m starting with 3 rounds of chemo, 21 days apart, surgery (debulking- sounds great) then 3 more rounds of chemo. My cancer had already spread throughout my peritoneum so I think the plan is to see if chemo helps shrink the tumours before surgery. I had my second chemo a couple of days ago, I’m doing ok with it but this time my taste buds seem to be off, also I get that bone pain, hopefully it goes away fast. Just curious did you have any symptoms? Mine was found while I was having a totally different test so the diagnosis came out of nowhere. I’m still reeling with my new reality! I can’t believe I am so sick, it’s been totally scary.
I just has had my third chemo, and I’m getting a lot of abdominal pain too. This one was my toughest so far. Lots of body and feet pain, but I’m getting through it.
I hope your chemo is kicking all those cells too!! And then you can have an optimal surgery!
I have no idea if you’d be interested but I went to an ovarian cancer support group yesterday. It is held once a month in London through Wellspring at the downtown YMCA. It was a really great group of women, all at different stages dealing with this disease. It was a very positive experience and I got some great advice right away. One lady drives from Windsor every month, so I thought I’d pass along the info.
I hope your abdominal pain means it’s killing all your cancer cells too! Stay cool it’s supposed to be ridiculously hot over the next few days.
You can also private connect with each other by clicking on the person (user name) you want to message.
Then those comments won't show on the public site and you can exchange more details.
Yes, it is good to have various options for support, online and in person as I found what you need in terms of support changes over time.
There are also webinars on the main site on genetics - good to check them out - also be sure you have access to genetic counselling as well.
The link is below and be sure to scroll down the page to see all the pre-recorded webinars
https://ovariancanada.org/events-support/go-online-for-support/webinar-series
I sent you a private message with info on the support group.