The Olaparib stopped working and now once again back to chemo starting Thursday. Last chemo was Cisplatin and Paclitaxel. The Cisplatin gave me permanent tinnitus and low white blood cells (shots for this). It was discontinued after round three. The Paclitaxel caused me to lose all my hair everywhere. Has anyone has experience with either the Carboplatin or the Doxorubicin. I want to be ready for what comes. And what is so sad is that I feel so good right now since stopping the Olaparb. I still have some fatigue but the stomach issues have gone. Back to the trenches.
Hope your chemo cycles go ok, be well!
@Soledad Thanks for the positive energy my way. For me the rash went away within a week, and the fourth cycle delay was just what was needed. And, I didn’t get the rash again, so hoping that you heal and it never comes back for you:-) j
Hope your next scan shows it’s gone.
Wow! Mine happened following 3rd cycle as well and also delayed my fourth (which was yesterday) by one week! I am so routing for you and Teddybear to be cleared of potential and actual blockages! My fingers are crossed for you to have some hopeful healing results shown during your scans
My Ca 125 is going up and my oncologist today suggested more chemo with the drug Caelyx. I looked up the side effects of this drug as I am so drug sensitive, and they seem horrendous and could be life threatening. Has anyone had experience with Caelyx that you could share?
On a personal note, While I have not had Caelyx yet, it was well tolerated by some of the ladies in our in-person support group.
Perhaps someone with recent experience will be able to post here.
Yes, those all sound very similar to the list given on these drugs - although be sure to let your medical team know about the eyes burning and such (as sometimes they can adjust the dosage drip rate - many ladies have shared this response with me) and that may help lessen the severity / reaction and side effects)..
Yes, day 4-5 post chemo seems to be the most common worst day... here is an option you can ask your medical team about....for some of us, Dexamethazone on day 2 and 3 post chemo is usually 1 pill at 9am and the other at noon - so twice a day for 2 days post chemo. A few of us have found taking 1 pill on day 3 and the last pill on day 4 spreads out the awfulness and makes it not as bad...Again, please check in with your DR or NP to make sure this is ok for you.
You can also ask them what would help with the body ache/pain/stiffness (like and OTC med).
And, yes, I too have had to deal with the rash/pimple bumps issue - face and head - it tends to fade/lessen over time for me - I found that you can use corn starch directly on it if you are itchy (I also sprinkled that in on my scalp once the hair started to fall out to get relief)
Do you have a copy of the By Your Side support guide
You can order here: https://ovariancanada.org/living-with-ovarian-cancer/support-resources
Yes I have ordered a copy of By your Side.
Thank you again.
Hello @CountryLiving - how are you doing this month so far?